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  Our LBD and Parkinson disease journey Today I had fun out running around getting some items that I needed for ...an outing with grandkids....I almost forgot to do it and that is get pics of Santa with the grandkids...so I was running around getting clothes for them...I feel I was so blessed with my purchases and prices...felt bad that I was out and hubby was just setting at home. He doesn't even want the TV on he just sets and does nothing. I try to hurry back as fast as I can, and he is always just waiting for me. But my conscience always hurts leaving him.... then I was so excited to show him my buys and he isn't at all interested. But I set and explain each piece as if he wants to know everything. I sure do miss hm and he is setting right there. It totally makes my heart hurt. Yes, I am counting my blessings that he is here for Christmas.....but he isn't here....no one understands these diseases but someone who is facing them. All I can do is trust and pray the...

  Our LBD and Parkinson Disease Journey We have 4 children and 12 grandchildren....we also had a day care for foster children and we had 9 of them pass through our home....we were the tumbleweed day care. So I could pretty much guess what was wrong with a child. At least have something to go on. But with this Lewy Body Dementia Disease things change daily and it's such a guessing game. Hubby has had back problems for about 2 months now. We have the neurologist involved and she has offered her suggestions, and we have tried them all. She says it is not the meds but could be the stage he is in. Last night he was setting in his chair. A chair our son got for him ...this chair can do anything. Can even throw him out of it but also does everything else. Now with Lewy Body Dementia the short-term memory is what goes and changes. This man can tell you where to get gas and where to eat anywhere across the states. But has no idea what happened 10 minutes ago. Well last night I wa...

  I have found the hard way that there are two kinds of shopping trips. One is major business-like.... certain groceries, certain errands etc. that I must do alone. Because......I have found I have my list and I am focused in on what I am doing and then hubby.....no matter who is around or where we are decided to yell or talk real loud and say..."we have to go home right now"...well, what ever you do ..DO NOT ASK WHY.....because he then proceeds to yell or talk back real loud.... because I have to go P Mercy.....and he doesn't think there is anything wrong. People stop and stare and you want to crawl under the table.... it's a lot different having a 5-year-old say it than a 73-year-old...or he gets in the isle and stands there and won't move and people are trying to get around him and he gets angry with the people. So what you do is make certain shopping trips all about him. Then you are prepared to act fast and be ready for anything. Lists are for when sh...

  We had a great Thanksgiving....was just hubby and I, son and his two kids.... a quiet nice dinner...then our other son and his family of 5 came over and we had desserts and played a card game. was a lot of fun.... new game and just relaxing...Hubby did not play just watched us all. Today hubby has been really tired and has a stiff neck and some pain. So, he was up for a little while and then went off to bed......he has been spending about half the day in bed lately. I have the grandkids today as son is working so we will play, eat and just watch TV. Both grandkids have head colds, so I am doctoring them and just relaxing. Been pretty tired today. ..hubby has been talking more about his diseases. We both know that time is limited but we are just going to keep on keeping on. Trying to count our blessings and enjoy each day we have. God bless and thanks again for following our journey.

  Things were going where hubby just wanted to stay in bed for four days and nights. Pastor Phil came and prayed for him and he got up took garbage out and the next day he was up took a shower and was alert. This was good for a couple days. Then he has taken back to the bed. Today I went into the bedroom at 10:30 am and said "Brent you have to get up...he says "No I am going to rest". I said "no the doctor says you have to keep moving...so you have to get up and move around and keep your muscles working". It was hard but he got up took a shower and I have to sneak it to get the dirty clothes so he doesn't put them back on instead of the clean ones he takes into the bathroom...so we got him in clean clothes and then the battle of him brushing his teeth...he says "I did early this morning...no I say you were not up....so finally I convinced him he had to brush his teeth.......finally got him into a chair...but not moving.......this is so hard...he j...

  update.....doctor said an internal part on hubby's hearing aid failed...but the aid is still good....so the part is being ordered and is free due to being a recall.........we only have to pay for the service call....so hubby will get his hearing aid back and we won't have to have an extra expense....God is looking out for us.....cha ching..

  Well, hubbies hearing aid.. is not working...how long has it not been working....who knows....he has no idea.....so do I spend the money for a new one....or just not worry about it....either way...he didn't really use it when he had it in his ear...he always turned it real low...but also has problems understanding what is said when he hears it......decisions.... (doctor will let us know the cost of a new one)

  Our lewy body dementia and parkinson disease journey...tonight hubby went to bed early he said he was tired but wasn't hurting anywhere....I kept checking on him and he seemed to be resting..so since I was driving home tomorrow I decided to go to bed early also....sound asleep hubby on his side with his back to me....begins kicking and let's out a yell...I wake clear up and say brent stop...he flips to his back and a real loud growl mean growl...I say brent you have to stop....he flops a few times and wakes up....he says a bunch of horses were stomping him...I have to admit a fear hit me that I wouldn't be able to control him...but I also knew son in law and daughter were downstairs uf I needed them...please pray for us...please pray I will know what to do...I may not be able to take him any more...my heart breaks...

  Been pretty stressed for a couple weeks now....not just hubby but something and someone we are really praying for....well today I needed to walk to get the jeep ..the studs were on and we needed to pick up the jeep...all the kids were busy so I told hubby just stay here and wait...I will come back...just give me 30 minutes....and so I took off walking...it is about a 2 mile walk....when I walk I talk to God and we work things over...it's beautiful out and I am walking and crying...Lord...please help this situation out....then it comes to me ...this scripture "all things work together for good to them who are called by my name"....after this comes to me I say "Lord but don't' you understand the situation....and this was the scripture you gave me last time.....I need something like..."don't worry...everything will be ok"....or "just praise me the answer is on the way"....but no I get "all things work together for good to them who ...

  Our Lewy Body Dementia and Parkinson disease journey Today's post is not a happy one. But it is necessary for you who are also going through these crazy diseases. Hubby has been real tired not doing much just sleeping. I needed to go to the store and he was awake so I said "do you want to go with me". He says "yes". I run to the car and come back and he has my coat on. I said "take my coat off and here is your coat". This made him angry...real angry. He gets real mad. Jumps back and then gets right in my face and starts screaming. He can do what he wants to do...etc. He was red in the face and real scary to be honest. I of course am bull headed, and I stand my ground and said. "stop" he comes at me with his arm in the air ready to smack me. I then turn and walk out to the car. He comes out in his own coat and doesn't even remember the episode....he just says he is tired. Mercy...how does a person live like this?....daug...

  Hubby hasn't been feeling well for several days....please say a little prayer for him......nothing serious just real real tired ...his face is flushed and he just wants to rest....we appreciate all of you and so glad we can come to you when we need an extra prayer sent our way....I have been carrying a lot on my heart and yesterday I was getting ready to make dinner...I reach down to get the air fryer...the cord stuck so I kneel down to get it...hitting my head on the cupboard so I fell backwards onto the floor with the air fryer...my foot catches the crock pot inside the shelf and it falls on my feet...so now I am laying on the floor with the air fryer and crock pot and my head bruised....mercy.....yes it was funny.......I agree...hubby slept on...glad I didn't wake him but also wishing he was there for me....life....not complaining just saying what is on my heart....God bless everyone....and thank you for listening...

  Our LBD and Parkinson Disease journey Sorry I haven't posted and a few have asked about hubby....He is doing good....we have been pretty busy lately and when we are not going ...hubby is sleeping....he sleeps a lot.......but I have found I have to stay awake at night until he goes to sleep or I wake up to him digging in cupboards....walking around the house....just restless....then when he finally falls asleep he is out cold....but other than that we are good....kinda tired as other things have come up that need attended to...I feel I don't get much rest but doing good ....... God is good and we are just resting and trusting God to work all things out for his Glory....

  As summer closes it's time to settle down and enjoy our homes....time to make our families and homes our priority....I was sent this quote......Embrace the beautiful changes this October, knowing God’s love for you never changes. Blessings!........thank you for thinking of me and sending me this........hubby has had a hard week and it finally dawned on me when talking with son that his meds were changing this week ......well.......now I know what in the world was going on........got this and now I can fix it.....poor hubby ..one day he was like the energizer bunny......just going crazy fast at everything....but causing him to fall, cut himself, drop things.....etc......I was going nuts...trying to figure out what was going on.........but we got it regulated and today has been peaceful again...Thank you God......even the doctors have a hard time getting just the right dose...its different with each person and each person's stages...but we are on track again. I have been worki...

  Our LBD and Parkinson disease journey Have you ever wondered what you would do if your spouse passed away from a terrible disease? Where do you go? What do you do? Where will you live? So many questions. They are on my mind all the time. Hubby is in a stage of Lewy Body Dementia....last night he had bad dreams and was yelling. I woke him up and he settled down...but I could not sleep....I tossed and turned until I finally got back up and walked the floor. I always walk when I am stressed, and I needed answers. I have children who are married with kids but what mother wants to make herself a burden to them and their families. I sure don't. But what lies ahead for me. I will take care of hubby as long as my body will hold out.... which if I have to crawl, I will be there for him. We are in this together. But for the future he cannot even think about it. The disease will not allow him to do so. He just looks at me and says, "I don't know but you will figur...

 Have you ever wondered what you would do if your spouse passed away from a terrible disease?  Where do you go?  What do you do?  Where will you live?    So many questions.  They are on my mind all the time.  Hubby is in a stage of Lewy Body Dementia....last night he had bad dreams and was yelling.  I woke him up and he settled down...but I could not sleep....I tossed and turned until I finally got back up and walked the floor.  I always walk when I am stressed, and I needed answers.   I have children who are married with kids but what mother wants to make herself a burden to them and their families.  I sure don't.  But what lies ahead for me.  I will take care of hubby as long as my body will hold out.... which if I have to crawl, I will be there for him.  We are in this together.  But for the future he cannot even think about it.  The disease will not allow him to do so.  He just looks at me...

  Our Lewy Body Dementia and Parkinson Disease Journey Not sure where to start...hubby has been not feeling well the last few days....gets very upset easy....thinks I am being mean to him by not letting him go back to work driving truck....then he sleeps most of the day and awake all night...last night he was in bed out of bed walking around...back in bed ...back out of bed...no sleep for this girl....today he is not feeling well...eyes are glassy and his face is flushed....same meds....just this crazy disease...he can't even think about what needs done or not done....he gets more obsessed over little pieces of paper on the floor...drives me crazy...he will walk around and pick up tiny things on the floor but walks over the toys or clothes the grandkids drop......neurologist says it's normal for this stage but drives me crazy...he can't understand why he is not getting better and he feels so tired all the time....I don't know why he isn't getting better but I know ...

  Nothing is impossible to those who believe. ....While the storm is raging,...... it's easy to forget how good God can be...but hold on! ............The enemy comes to rob,......... to kill and to destroy........Remember when God saved your marriage,........ helped you find that financial breakthrough?.......... Remember when your prodigal son came home,............ your relationship was mended? .........Remember when He sent that job out of the blue,..........or a neighbor to hold your hand while you were facing your darkest day? That same God is still in charge. ..........And He is still watching over you........... He did not bring you this far to let you down today..... Cling tightly to the hem of his garment.......... The healer is passing this way

  if your parents are downsizing, or moving to smaller places, or selling a home, give your mom and even your dad a break. For those things that you don't understand why they can’t just pitch, and why you think you know what needs to be tossed or saved, give them a little time to make their decisions. They are saying goodbye to their past, and realizing that they are getting ready for their end of life, while you are just beginning your life. As I have been going through things, it is amazing just how hard it is to get rid of objects. But, life goes on, and you realize they are just things, but sometimes things comfort us. So give your parents or grandparents a break. Listen to their stories, because in 40 years, when you are going through those boxes and the memories come back, it will be hard to get rid of those reminders of precious moments that make up a life well lived. You just don't have a clue until it happens to you, and then you will remember how you rushed them, and ...

  Our Lewy Body Dementia and Parkinson disease journey Today hubby went to work with me...I was to scrap old paint off a wall of a house and prepare it so it could be painted again...we had to scrap and caulk all cracks. Hubby helped out as much as he could....got confused about tools....and directions but was a good help. As long as I kept the instructions one at a time. We worked hard and put in a long day. But got it all done. Tonight hubby went to bed early and was doing good until a few minutes ago when he woke up yelling and throwing his arms around. I finally got him awake and settled down and he said he was fighting a guy that was trying to hurt my foster mom (mom Carr)....weird which I haven't seen her in years....but hubby was fighting him in his dreams. Now he is sleeping sound. This disease is so weird...some days he is almost normal and others so confused. Almost like two people instead of one. I never know when or where he will be a mess....he got angry a fe...

  Today has started off....with me laughing, crying and walking away. First I find hubby standing in the kitchen holding a pair of pants. I say "What are you doing?" he says trying to find out how to get into these......so I get him in the bedroom find him pants...I walk away and finally go back to find him with all his pants out of the closet on the floor...."I say now what are you doing?"....he says trying to find the ones you want me to wear....mercy.........then he is calling for me in the kitchen....I find him at the coffee bar saying "where do I put the grounds"....he is trying to use the Keurig....."no Brent no coffee grounds you use a k cup:.........back to the socks........socks everywhere.....but he thinks not one of them is the right one.......he goes down to the laundry room......I say "brent you are not to do laundry any more....do not".........well....I go down as he is yelling up the stairs what is with all these clothes......

  Today was a sad day not a bad day just sad. I have been trying to get the last window in our house done before winter but always something seemed to come up and it didn't get done. So today was the day. Hubby and I worked together and got all 10 windows in except one when my wrists were broke and I was in casts our grandson Brayden helped grandpa. But today....hubby would try but would get so confused. He didn't know where to put the old boards....what to do with getting me tools. Just so many things we always did together. This time I was on my own. I would try to explain things to him but it would just confuse him more. Makes me sad....he is still leaving me...little by little.....and I already miss him and he is setting in his chair.....terrible disease.

  Well....I am happy to report I thank we are on a level plane.....things are going along good...Hubby sleeps a lot anymore but most of the other symptoms are under control. He even mowed a little more on the lawn yesterday before he went back to bed. Today he got up ate breakfast got dizzy and went back to bed. Even the grandkids could not get him up. But he is not in pain...no swelling, no excessive confusion, no yelling, no aggressiveness.... just on a level plane.......but I will take it. Thank you for all who have been asking. God bless and thank you for your prayers.

  Tonight, I am a tired old lady. Been busy ...the trip to Wallowa was stressful. When we were at the lake, we enjoyed it and being around the campfire was great. But driving over and back was hard. Hubby has a hard time being in the car for many hours. Since we have been home he has slept a lot and his legs have been swelling again. He went to work with me today for half a day but slept in the car in the shade...so I brought him home and he went to bed. He has been telling people that his body is just giving out on him. And it is. He went grocery shopping with me this evening and that was to much for him....he went to his chair and fell asleep again. That is about how our days are going...he sleeps a lot and I try to keep things going around the home...cleaning camper and getting things ready for Fall. This marriage is a one-person marriage right now...but I am so glad...he is still here. We told Wallowa goodbye...and it was sad but alot of people we know didn't get that...

  Well we had a great weekend trip to wallawa lake...hubby did good with the long trip over but the second day he slept all day....the third and fourth day's he did great....I didn't push him just let him enjoy the trip....kids and grandkids came over and we all had fun....we couldn't have campfires so daughter brought her propane firepit and it was great....this morning the wind came up fast and then the rain....I had the camper ready to go so we were prepared...trip home was stormy at first and then just cloudy.........got home and now resting up...tomorrow we will empty out maizy and get her ready for winter...no more trips out of town for us camping....we will just take her down to Hells gate in the spring...if we are both still here....before we left today Jerry Vantrease came over and prayed for us....we haven't seen him and Janette for over 3 years but when he came to camp we were family of God again....he blessed us so much with his prayer....and I got a large i...

  At wallawa marina. Been so nice .. hubby has had a hard time. He wants to keep up with everything but then gets sick

  Well it's 2.59 am hubby woke me up with yelling and fighting the air.. I got him settled down and he said he was being attacked by two guys at a truck stop. He had a bad day yesterday. Lots of confusion....praying for our camping trip...leaving today... guess I need coffee..sleep on friends...God bless.

  Today has been relaxing...we are home from our trip to our neurologist. Hubby has been not feeling well and sleeping a lot. I think it has to do with his meds being upped....his leg is swollen but not much can be done. So he just rests. He sets on the patio and sleeps in his chair...I go out and check on him and give him drinks and snacks. No talking ...he just sets. I am in the house doing housework. We live to different lives in the same house. Our neurologist understands the problem. But this is how it will be. I am learning my new role. I care for him and he tries to keep on keeping on. His moods come and go....when he isn't asleep he is cranky. Not his fault and I am learning how to deal with it. But this afternoon the professionals came out of the woodwork....calls....all wanting to help in some way....but not help....well Helen you don't qualify for this...but it is a good program....well Helen just wanted to let you know about this program but insurance ...

  Getting everything ready to leave for wallawa on Thursday...hubby can't walk today...guessing it is from the ride home yesterday from Nampa...this weekend taking the dodge ram so he will have more room plus pulling Maizy Belle...so if he needs to rest he can and we will stop more often....I know most of you think I am crazy but we always go the long way to wallawa...we love the trip through all the farm land...and it's not so stressful as rattlesnake grade....this is our last time for this trip so going to make the most of it....meeting daughter and her family there so that will be fun....we always camp next to each other and since I am only 13 feet long we always turn my camper so our doors go out together and we just make the area between all ours....plenty of room if anyone wants to drive over to visit....making stew and homemade bread for dinner and working on the house...God bless and have a great Labor Day week........

  Our Lewy Body Dementia and Parkinson Disease Journey Having a good time at daughters we are going home in the morning...hubbies appointment went good...we love our neurologist...she understands everything we are facing.....she talks with us and helps us figure out how to handle situations....hubby's health is in decline...which we can see everyday....I hate taking meds but she feels that if she ups hubby's meds it will help him out....so I said yes....she is the doctor and I will respect her as such...I felt that she probably would do that so I was prepared .....we know what the end will be so we just try to make things the best we can for him....I always say only God knows our day and hour.....so we just keep on keeping on....she does not want hubby to get a wheel chair even though he walks very little any more...she wants us to keep him using what muscles he has left....so that ended that decision for me also....well going home in the morning....