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Showing posts with the label family journey

Our LBD and Parkinson Disease Journey

  Our LBD and Parkinson disease journey Have you ever wondered what you would do if your spouse passed away from a terrible disease? Where do you go? What do you do? Where will you live? So many questions. They are on my mind all the time. Hubby is in a stage of Lewy Body Dementia....last night he had bad dreams and was yelling. I woke him up and he settled down...but I could not sleep....I tossed and turned until I finally got back up and walked the floor. I always walk when I am stressed, and I needed answers. I have children who are married with kids but what mother wants to make herself a burden to them and their families. I sure don't. But what lies ahead for me. I will take care of hubby as long as my body will hold out.... which if I have to crawl, I will be there for him. We are in this together. But for the future he cannot even think about it. The disease will not allow him to do so. He just looks at me and says, "I don't know but you will figur...