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Showing posts with the label family journey

Our Lewy Body Dementia and Parkinson Disease journey....memory hugs

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 For Christmas we decided to have grandpa give each grandchild that was home a memory hug...since he has dementia and parkinson we don't know how long his memory will be with us.  So each grandchild was given a sweatshirt and we painted Brents hands and arms and he gave each child a hug, which put his hand print on the back of each shirt.     

Our Lewy Body Dementia and Parkinson Disease Journey...moving

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  Been having to rethink some of my ideas and change a few things I wanted to do in the future....ONE .... yes, it is a good idea for one level ........but not for hubby finding his way around in a new environment...especially with him already getting lost a few times when at another place....so maybe have to rethink how he moves around in our current home....instead of moving him....TWO....sons and son in law (Jon, Jeremy and Nathan)....are telling me to slow down....so thankful for each of them...they keep me calm and in my place.....all of them are there for me and I love them all so much...even grandson set and told me yesterday....grandma slow down and think this through....we can make this work...thank you Brayden...hubby fell the other day trying to get up two steps to the kitchen and cut his arm....but I think I could use child gates and block that way of him going....also removing all tools and extra gas etc out of all backyard sheds....going to child proof all of them for...

Our Lewy Body Dementia and Parkinson Disease Journey...changes in life

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  It's so crazy how our lives change...for 40+ years this time of year I am working on my vintage campers. I love getting it all dressed up and ready for the camping trips of the year. This year life has changed so much that I just look at things and walk on by. I would always think of a theme and then shop for items and work the insides of the camper over for that theme. Hubby has changed and I guess I have changed. For the good I am not sure. But I look at so many things with a different eye, now. Even plans for the backyard have changed. Maybe closer to Spring I will get my mojo back but for now. No interest....I do more wondering around in circles than getting things done. Well have a great day and try to smile and make someone else's day...God bless...

Our LBD and Parkinson Disease Journey..........learning what to do

  Have you ever wondered what you would do if your spouse passed away from a terrible disease? Where do you go? What do you do? Where will you live? So many questions. They are on my mind all the time. Hubby is in a stage of Lewy Body Dementia....last night he had bad dreams and was yelling. I woke him up and he settled down...but I could not sleep....I tossed and turned until I finally got back up and walked the floor. I always walk when I am stressed, and I needed answers. I have children who are married with kids but what mother wants to make herself a burden to them and their families. I sure don't. But what lies ahead for me. I will take care of hubby as long as my body will hold out.... which if I have to crawl, I will be there for him. We are in this together. But for the future he cannot even think about it. The disease will not allow him to do so. He just looks at me and says, "I don't know but you will figure it out". A doctor put in for m...