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Showing posts with the label parents getting old

Our Lewy Body Dementia and Parkinson disease journey

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  Do you remember reading and learning about the leprosy camps and islands etc...well in today's world it is Lewy Body Dementia....as soon as you tell assisted living, homes etc....oh, our loved one has Lewy Body Dementia...they make a face at you and say "oh that is a tough one"...we cannot help ....our facility is not set up for that. And you walk away thanking you are diseased....even picking up your prescriptions they ask do you understand this medicine....I say "yes my hubby has Lewy Body Dementia"....oh my goodness..."I am so sorry" that is a hard one. I know I am not the only person out there with a loved one with these diseases....but they treat you like...oh, my ..well good luck....Anyway we are good here today...picked up the meds and getting the dodge packed and ready for a few days away....heading to Meridian for the neurologist appointment ...daughter and her family are always there to help with the new appointment and the changes we need...

Our Lewy Body Dementia and Parkinson Disease journey

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  Just a note...hubby just gave me a heart attack....he is out on the patio watching the grandkids. I step in to vacuum the floor in the living room while they are outside. Grandson Gabe is with them, and he is almost 9 so I thought ok...the windows and door is open so I can keep track. I finish... start wrapping the vac up and look outside.....mercy......I take off running ..hubby is on the 12-foot ladder trying to climb on the roof of the porch. Gabe had thrown his rubber action figure up on the roof...this crazy guy decides he will get it. Now this is a man who shakes from Parkinson...can't walk straight and tall, and can't keep his balance is now on a 12 foot ladder trying to get his foot up to get on the roof. I grab the ladder and start telling him to climb down...while I am trying to hold the ladder. He makes it down and is so upset at me. Yes, he can do this....I just won't let him....good grief....

Our lewy Body Dementia and Parkinson Disease journey...remembering his father

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  Cleaning out a couple sheds and found Brents three wheel bike....When Brent's dad was in his late 80's early 90's he had a three wheel bicycle that he would ride from Weippe to Pierce and back which is 11 miles up hill...he would go to the pharmacy there and get his meds....he wouldn't let anyone take him he would say "I have all day to do this" and off he would go...many of you remember seeing him and he even made the newspapers.....our son Jon came up with a three wheel bike for his dad for Father's day. in 2018.....he saw a vintage one online and bought it.... hubby was so excited ...reminded him of his dad......yes, I tried it but I forgot the hand brakes and ran into the neighbor's fence......we just love this, and it was so thoughtful of Jon and Sue to get this for their dad...it has brought some good memories back for Brent....no hubby didn't ride it...was hard just getting him on it....

Our lewy body dementia and parkinson disease journey #23 parents

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