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Showing posts with the label caregiver

Our Lewy Body Dementia and Parkinson journey # 14 groups

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  You know when a disease or illness comes your way....you are really encouraged to join groups...people who are going through the same issues as you....then you are told you will have to eventually fit the mold....you are no longer called wife...you are now caregiver...you are told the best things to do is learn to lie, lie, lie...it will keep your hubby from getting more confused...you are told certain words not to use such as "do you remember"..."stop don't do that" etc.......I struggle....I guess they know what they are doing but....hubby and I are different...when there is an issue ..we talk and then we pray....it's different when you both know the Lord...even in issues hubby will eventually turn back to what the Bible says........so I will watch the videos, take the lessons on being a caregiver....etc...but in the long run....we will find what works for us...and for us....we believe the hand of the Lord is in this and will help take us through...yes, w

Our Lewy Body Dementia and Parkinson Journey # 17 old blue

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  Another day another problem solved....Hubby has a problem with dizziness...it comes and goes pretty bad....so he doesn't like to walk much...so today I take him to walk Walmart and it is only about 15 minutes and he wants to go to the car...so I say ok let's walk a thrift store ...easy in easy out.... we get there and he gets real dizzy....I turn around and there sets this ...I don't' know what it is called...but hubby set down in it....and we bought it....hubby calls it his "new vehicle" and he loves it....so now instead of going home we are going for a walk at Hells gate and a picnic....hey....we got to do what we got to do....and yes we called the neurologist and she says it's just part of the package we are facing....well we are dealing with it this way...have a great day all...it's beautiful out there....(oh we named it "old blue")

Our lewy body dementia and parkinson disease journey #13 working in yard

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 Today we got up early and wanted to get out side and enjoy the day the sun is shining and it's 44 degrees.   We got to work on a couple projects and hubby was having a good day...with dementia it is a roller coaster....but this week has been good. So we were each working away and I would say to hubby "could you do this" or later I would say "Brent I need this" and just was focused on working.  When I noticed hubby was just standing there ....he comes over and says "what am I supposed to do"..."Where do I go"....then I realized I had been barking out things for him to do....as caregivers we forget that without them having casts, or bandages or bleeding we forget there is a problem......we forget that they can't focus or remember.... Made me feel bad and I apologized....I slowed down and spoke slower....I gave only 1-2 tasks to do  and explained them as we went...I have to remember to be more careful....we decided that maybe I should wrap