Our Lewy Body Dementia and Parkinson Disease journey #94

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Today has been relaxing...we are home from our trip to our neurologist. Hubby has been not feeling well and sleeping a lot. I think it has to do with his meds being upped....his leg is swollen but not much can be done. So he just rests. He sets on the patio and sleeps in his chair...I go out and check on him and give him drinks and snacks. No talking ...he just sets. I am in the house doing housework. We live to different lives in the same house. Our neurologist understands the problem. But this is how it will be. I am learning my new role. I care for him and he tries to keep on keeping on. His moods come and go....when he isn't asleep he is cranky. Not his fault and I am learning how to deal with it. But this afternoon the professionals came out of the woodwork....calls....all wanting to help in some way....but not help....well Helen you don't qualify for this...but it is a good program....well Helen just wanted to let you know about this program but insurance will not pay for it and it s out of the pocket...well Helen ..we could help if you lived out of Lewiston...Lewiston has limited offers to help....crazy thing is I NEVER ASKED FOR HELP....so discouraging.......well Helen you know the end results and what is going to happen and take place...we are here but just know we are in Boise...on and on....good grief....but actually we are good....as good as can be expected....so good night all...stay safe and blessed...

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