Our LBD and Parkinson Disease Journey

 

Things were going where hubby just wanted to stay in bed for four days and nights. Pastor Phil came and prayed for him and he got up took garbage out and the next day he was up took a shower and was alert. This was good for a couple days. Then he has taken back to the bed. Today I went into the bedroom at 10:30 am and said "Brent you have to get up...he says "No I am going to rest". I said "no the doctor says you have to keep moving...so you have to get up and move around and keep your muscles working". It was hard but he got up took a shower and I have to sneak it to get the dirty clothes so he doesn't put them back on instead of the clean ones he takes into the bathroom...so we got him in clean clothes and then the battle of him brushing his teeth...he says "I did early this morning...no I say you were not up....so finally I convinced him he had to brush his teeth.......finally got him into a chair...but not moving.......this is so hard...he just wants to sleep....he doesn't even want to eat....I get him food and he will eat it but no appetite. I look at him and can see him going down the hill.....I try to keep being positive and cheerful for him....I said I want to go see the lights at the city park be turned on tomorrow....why don't I park the car where you can go and see them...no he says I will just stay home....I said I want to go to the Clarkston craft fair.....on Saturday and he says I will go with you....well if he wants we will take the rollator and go for an hour but will see if that works....I am not complaining just letting you know our update..no he is not in pain....just a stage and the stages seem to be coming faster for us...only the good Lord knows what is tomorrow for us and how much time....I will keep making memories even if just for me....I need to keep busy and keep trying to help him....I am in this for life....young people just don't know what they are missing by standing by their partners for life....not always an easy road but a good road...God bless....and thanks for listening...

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