Our LBD and P disease journey #29

-

 


I guess I need to just count my blessings when I can get 3-4 days of somewhat normal life....today I am discouraged. Been a hard day.....hubby slept good last night I didn't...I had a lot of things to think about and was trying to figure out some answers.....didn't work ...no real answers anyway.........

Today hubby has been having anger problems.....youngest son Jeremy was here today visiting. We were all setting and talking when hubby starts turning purple and then begins to cry....and cry and then yell....he was mad that no one listened to him....we ask what are you talking about and he says he can't remember but it was a while ago....then he gets mouthy and mad. Son Jeremy says "dad just relax and tell us what you want to say".....he says nothing and relaxes.

So son and I start talking again ...we are still in the same room....when it begins all over again....cry, yelling and anger....son says "dad stop and tell us what you need or want".....then hubby begins to say it is all my fault...and starts complaining about something I did or didn't do.....and just goes off..........not true but we let him talk.....and then he settles down again and relaxes....

This has been the day......finally son gets hubby settled down and hubby begins to read the newspaper and it is all over.....

Son had to leave and go home and hubby is fine and it's been several hours now......my nerves are shot....I want to cry and try to fix this crazy stuff.... hubby probably won't talk the rest of the evening so it's all calm and quiet now.....

Sorry to unload but this is life now....if you have time remember to keep us in your prayers....I know I ask you all a lot and I am so very sorry....this is all a new life for me....never dreamed I would be going through this craziness....but here I am....hope to sleep tonight so take care friends and thanks for listening...please don't think hubby is a bad person...He is not.......he is just mixed up right now with this disease taking control....night

Comments

Post a Comment

Popular posts from this blog

Our Lewy Body dementia and parkinson disease journey #22 house

-
Image
 We are on this journey and it seems to be a whole lot involved with it.  Decisions that a person must stop and face.  One is on my mind today and that is ......our home.  When we purchased this home 21 years ago we were thinking about living in it for about 5-8 years and then selling.  But it became home.  So we have stayed.   Now, that we are dealing this these diseases it's time to take another look at our home.  It is two levels, so stairs....and it also has a drop down extra living room with 3 steps down and on the other side a two step up to kitchen.  Now with hubby starting to have walking and standing issues...and dizzy problems.  Time to rethink.. Of course I think it's no problem for me...I got this but the laundry room is in the basement with two more bedrooms, family room and pantry.  So I go up and down these stairs all day long.  And I am getting older so decisions. Do we sell?.....do we stay put until things get real bad?  do we let the kids just take over?.....d
Read more

Removing and replacing our old pathway

-
Image
 We moved into our home about 15 years ago at that time we decided to place a walkway down through the yard to a firepit.  Our family loves to sit around the backyard fire and roast hotdogs and marshmallows.  We haven't done much to the walkway except spray it once in a while with weed kill but today we decided it was time to remove and repair.  So we began to dig out the bricks..it was amazing how some were buried and some were broken.  They all were beginning to sink down deeper and deeper. There was a lot of moss that had even grown over the top of them.  But hubby and I worked together and got them all dug up.  The pathway went from the deck to the firepit ring.  All of these bricks have been recycled we would watch for free ones.  Sometimes just driving down the road there would be bricks with a sign take all you want.  So some of these bricks have different says on them.  We also enjoy using our dutch ovens.  So son showed us how to maybe add a dutch oven are
Read more

Our journey with Lewy Body dementia and parkinson disease #1 beginning

-
Image
 Late in the year of 2023 my hubby started loosing a lot of weight for no reason just not hungry.  Once in a while he complained that his stomach was hurting.  So we scheduled doctor appointments ....doctors checked him out, ran blood work, scans, MRI's, etc....and every test came back nothing was wrong.  He was fine.  So we would leave and I would notice things...something just wasn't right.  Also, son kept noticing that his Dad's hand would shake sometimes....then his eye began to twitch....so I took him to the eye doctor and he was fine.  Again more MRI's and nothing wrong.  The eye kept twitching and the hand kept shaking. Our primary doctor said "Well, we can send him through a bunch of tests, but the out come will be the same".  Nothing we can do.  I wanted answers. So, a few months later in about November hubby almost collapsed at Walmart while walking.  He was sick.  I brought him home and he went into the bathroom and immediately came out and said &qu
Read more