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  Our Lewy Body Dementia and Parkinson Disease Journey Not sure where to start...hubby has been not feeling well the last few days....gets very upset easy....thinks I am being mean to him by not letting him go back to work driving truck....then he sleeps most of the day and awake all night...last night he was in bed out of bed walking around...back in bed ...back out of bed...no sleep for this girl....today he is not feeling well...eyes are glassy and his face is flushed....same meds....just this crazy disease...he can't even think about what needs done or not done....he gets more obsessed over little pieces of paper on the floor...drives me crazy...he will walk around and pick up tiny things on the floor but walks over the toys or clothes the grandkids drop......neurologist says it's normal for this stage but drives me crazy...he can't understand why he is not getting better and he feels so tired all the time....I don't know why he isn't getting better but I know ...

  Nothing is impossible to those who believe. ....While the storm is raging,...... it's easy to forget how good God can be...but hold on! ............The enemy comes to rob,......... to kill and to destroy........Remember when God saved your marriage,........ helped you find that financial breakthrough?.......... Remember when your prodigal son came home,............ your relationship was mended? .........Remember when He sent that job out of the blue,..........or a neighbor to hold your hand while you were facing your darkest day? That same God is still in charge. ..........And He is still watching over you........... He did not bring you this far to let you down today..... Cling tightly to the hem of his garment.......... The healer is passing this way

  if your parents are downsizing, or moving to smaller places, or selling a home, give your mom and even your dad a break. For those things that you don't understand why they can’t just pitch, and why you think you know what needs to be tossed or saved, give them a little time to make their decisions. They are saying goodbye to their past, and realizing that they are getting ready for their end of life, while you are just beginning your life. As I have been going through things, it is amazing just how hard it is to get rid of objects. But, life goes on, and you realize they are just things, but sometimes things comfort us. So give your parents or grandparents a break. Listen to their stories, because in 40 years, when you are going through those boxes and the memories come back, it will be hard to get rid of those reminders of precious moments that make up a life well lived. You just don't have a clue until it happens to you, and then you will remember how you rushed them, and ...

  Our Lewy Body Dementia and Parkinson disease journey Today hubby went to work with me...I was to scrap old paint off a wall of a house and prepare it so it could be painted again...we had to scrap and caulk all cracks. Hubby helped out as much as he could....got confused about tools....and directions but was a good help. As long as I kept the instructions one at a time. We worked hard and put in a long day. But got it all done. Tonight hubby went to bed early and was doing good until a few minutes ago when he woke up yelling and throwing his arms around. I finally got him awake and settled down and he said he was fighting a guy that was trying to hurt my foster mom (mom Carr)....weird which I haven't seen her in years....but hubby was fighting him in his dreams. Now he is sleeping sound. This disease is so weird...some days he is almost normal and others so confused. Almost like two people instead of one. I never know when or where he will be a mess....he got angry a fe...

  Today has started off....with me laughing, crying and walking away. First I find hubby standing in the kitchen holding a pair of pants. I say "What are you doing?" he says trying to find out how to get into these......so I get him in the bedroom find him pants...I walk away and finally go back to find him with all his pants out of the closet on the floor...."I say now what are you doing?"....he says trying to find the ones you want me to wear....mercy.........then he is calling for me in the kitchen....I find him at the coffee bar saying "where do I put the grounds"....he is trying to use the Keurig....."no Brent no coffee grounds you use a k cup:.........back to the socks........socks everywhere.....but he thinks not one of them is the right one.......he goes down to the laundry room......I say "brent you are not to do laundry any more....do not".........well....I go down as he is yelling up the stairs what is with all these clothes......

  Today was a sad day not a bad day just sad. I have been trying to get the last window in our house done before winter but always something seemed to come up and it didn't get done. So today was the day. Hubby and I worked together and got all 10 windows in except one when my wrists were broke and I was in casts our grandson Brayden helped grandpa. But today....hubby would try but would get so confused. He didn't know where to put the old boards....what to do with getting me tools. Just so many things we always did together. This time I was on my own. I would try to explain things to him but it would just confuse him more. Makes me sad....he is still leaving me...little by little.....and I already miss him and he is setting in his chair.....terrible disease.

  Well....I am happy to report I thank we are on a level plane.....things are going along good...Hubby sleeps a lot anymore but most of the other symptoms are under control. He even mowed a little more on the lawn yesterday before he went back to bed. Today he got up ate breakfast got dizzy and went back to bed. Even the grandkids could not get him up. But he is not in pain...no swelling, no excessive confusion, no yelling, no aggressiveness.... just on a level plane.......but I will take it. Thank you for all who have been asking. God bless and thank you for your prayers.

  Tonight, I am a tired old lady. Been busy ...the trip to Wallowa was stressful. When we were at the lake, we enjoyed it and being around the campfire was great. But driving over and back was hard. Hubby has a hard time being in the car for many hours. Since we have been home he has slept a lot and his legs have been swelling again. He went to work with me today for half a day but slept in the car in the shade...so I brought him home and he went to bed. He has been telling people that his body is just giving out on him. And it is. He went grocery shopping with me this evening and that was to much for him....he went to his chair and fell asleep again. That is about how our days are going...he sleeps a lot and I try to keep things going around the home...cleaning camper and getting things ready for Fall. This marriage is a one-person marriage right now...but I am so glad...he is still here. We told Wallowa goodbye...and it was sad but alot of people we know didn't get that...

  Well we had a great weekend trip to wallawa lake...hubby did good with the long trip over but the second day he slept all day....the third and fourth day's he did great....I didn't push him just let him enjoy the trip....kids and grandkids came over and we all had fun....we couldn't have campfires so daughter brought her propane firepit and it was great....this morning the wind came up fast and then the rain....I had the camper ready to go so we were prepared...trip home was stormy at first and then just cloudy.........got home and now resting up...tomorrow we will empty out maizy and get her ready for winter...no more trips out of town for us camping....we will just take her down to Hells gate in the spring...if we are both still here....before we left today Jerry Vantrease came over and prayed for us....we haven't seen him and Janette for over 3 years but when he came to camp we were family of God again....he blessed us so much with his prayer....and I got a large i...

  At wallawa marina. Been so nice .. hubby has had a hard time. He wants to keep up with everything but then gets sick

  Well it's 2.59 am hubby woke me up with yelling and fighting the air.. I got him settled down and he said he was being attacked by two guys at a truck stop. He had a bad day yesterday. Lots of confusion....praying for our camping trip...leaving today... guess I need coffee..sleep on friends...God bless.

  Today has been relaxing...we are home from our trip to our neurologist. Hubby has been not feeling well and sleeping a lot. I think it has to do with his meds being upped....his leg is swollen but not much can be done. So he just rests. He sets on the patio and sleeps in his chair...I go out and check on him and give him drinks and snacks. No talking ...he just sets. I am in the house doing housework. We live to different lives in the same house. Our neurologist understands the problem. But this is how it will be. I am learning my new role. I care for him and he tries to keep on keeping on. His moods come and go....when he isn't asleep he is cranky. Not his fault and I am learning how to deal with it. But this afternoon the professionals came out of the woodwork....calls....all wanting to help in some way....but not help....well Helen you don't qualify for this...but it is a good program....well Helen just wanted to let you know about this program but insurance ...

  Getting everything ready to leave for wallawa on Thursday...hubby can't walk today...guessing it is from the ride home yesterday from Nampa...this weekend taking the dodge ram so he will have more room plus pulling Maizy Belle...so if he needs to rest he can and we will stop more often....I know most of you think I am crazy but we always go the long way to wallawa...we love the trip through all the farm land...and it's not so stressful as rattlesnake grade....this is our last time for this trip so going to make the most of it....meeting daughter and her family there so that will be fun....we always camp next to each other and since I am only 13 feet long we always turn my camper so our doors go out together and we just make the area between all ours....plenty of room if anyone wants to drive over to visit....making stew and homemade bread for dinner and working on the house...God bless and have a great Labor Day week........

  Our Lewy Body Dementia and Parkinson Disease Journey Having a good time at daughters we are going home in the morning...hubbies appointment went good...we love our neurologist...she understands everything we are facing.....she talks with us and helps us figure out how to handle situations....hubby's health is in decline...which we can see everyday....I hate taking meds but she feels that if she ups hubby's meds it will help him out....so I said yes....she is the doctor and I will respect her as such...I felt that she probably would do that so I was prepared .....we know what the end will be so we just try to make things the best we can for him....I always say only God knows our day and hour.....so we just keep on keeping on....she does not want hubby to get a wheel chair even though he walks very little any more...she wants us to keep him using what muscles he has left....so that ended that decision for me also....well going home in the morning....

  Traveling to nampa took 6.5 hours. Hubby had a hard time riding in my jeep...next time bringing the truck with more room for him. Stopping a lot for him and all the road construction. What a crazy drive...but we made it... today is his doctor appointment. .he is resting...before we go...been getting a lot of shopping done this morning...enjoying daughter and family

  The world is not fooled. ....They do not believe for a second that because we are Christians, we have perfect lives..... Christians should be the first to raise their hands and offer a confession:........... “I struggle sometimes!” .........and yes I do......Life is hard for everyone...... Suffering happens to even the most faithful of people............. we need to show the world that we are real and human...... But more than that,......... we show the world that when suffering happens,...... we reach for the Rock that is God and the Refuge that is His Son, Jesus Christ. ....just something on my heart this morning......Lord, help me.....God bless...

  Today it's hot and I am home so staying in the AC home....cleaning and getting caught up on housework. I go to our room to change sheets and pick up and I find a pair of matching socks laying neatly on the floor side by side next to hubby's dresser. Why??? I grab them and toss in the laundry. I then go to the guest room to clean there I find next to the bed a pair of socks on the floor neatly placed side by side. So I grab them and think what??? Been married to this man for over 50 years this has not been one of his problems....another pair in by his chair...another pair next to the couch. So I finally go ask him...."he has no idea and doesn't remember putting them there".....what would make him obsessed with socks.....mercy.....6 pairs all laid out and ready I guess........

  Well, it's been one year today...that hubby collapsed at Walmart. Yes, he had issues before this and doctor after doctor could not figure out what was wrong. was so stressful...than he just collapsed at Walmart and fell over on the cart in pain. We found out he had a large hernia extending out on his side...so then doctor after doctor until a surgeon could get him into surgery. Three emergency room trips with it coming out and each time getting bigger. But this brought about more symptoms on the other things that were going wrong. So, they finally sent us to Meridian and the neurologist knew exactly what we were facing. I have to say she was right as things have gone downhill pretty fast since that day. We are still seeing four different doctors and each one just shake their heads as they know our days are limited and there is nothing to change the course of these diseases... Yes, I know we are to rely on the reports of the Lord and not the report of man. But we are all h...