Lewy Body Dementia and Parkinson Disease journey #48


I am a grandma of 12....youngest is 5...I love taking care of grandkids no matter the age. But with a 5 year old you can play with, make the smile, get feedback, watch them play etc......now take a 73 year old hubby with lewy body dementia and Parkinson.........
He goes for most of the day with nothing to say, no smiles, no opinions, no thoughts.......no ideas........just sets....if I say lets go he gets up and goes but sets in the car.....
A horrible disease.....when someone comes he tries real hard to be himself....and when they leave he is back to just setting.
Our neurologist says..."Helen, it will get worse"........all I can say is "Lord help me to keep my head above water"......I work hard to not have to think about it....hubby goes with me....but not really there.......
No one understands this unless they are going through it.....a strange life that I will never get used to.......and they crazy part is ...IT'S NOT HIS FAULT"...............

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