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Every time I give a good report about our disease something goes crazy. Last night was just weird. We still share the same bed...and before you all go crazy the reason is so I can know when hubby is struggling. If I put him in the guest room he could be all over the house and me not knowing he is even up. Since you all have been a part of our journey I have tried to be honest in everything and keep you all informed about this disease and also for the ones who are also going through this so you know you are not alone. Well, I was exhausted, so I went to bed a little before hubby. I was sound asleep when I noticed hubby struggling...like shaking, legs kicking, etc....this wakes me up and then hubby leans up and stares at me...and yells "what are you doing in my bed"...."this is my bed"...why are you here"....I say "what are you talking about"...he says "you know this is my bed"....I said "do you want to sleep in the guest room"......

  Lately it seems like hubby is in a slump...he wants to sleep all day and lay awake at night. He sets and just stares at the grandkids or me and doesn't' want to do anything. Finally, I turned around and said, "Brent do you hurt anywhere"...he says "no". I said, "then get up and move and find something to do".....I said, "you are not dead and not dying today so let's not just give up". Apparently, that is all he needed...he walked in and talked to the grandkids and then looked for his word search books and started working them. Sometimes we just need to be shaken from our thoughts and life. He is now more like the old Brent. Not sure if it was me and daughter talking about the wheelchair that has done it or not. We ordered a chair, and it will be coming but it is to get him outside not depress him. We go to the neurologist in a couple weeks and see how things are going...but until then...we are staying alive and moving these ...

  We are off on a roll....kinda driving me crazy and it's only 7:45 am....it's garbage day for us here today so we have to take our garbage bin to the side of the road. This has always been hubbies' job so I wake him up and say "don't forget the garbage man is coming today". He says "ok". I go get the house ready for the grandkids to come for homeschool. I look out the window and just have to laugh....poor hubby got confused and out along the main road is my kitchen garbage can and the bathroom wastebasket ...just setting along the road. I say "Brent no you have to take the garbage cart out the one that is outside and put it along the road:. mercy....so grandson asks hubby could I have pancakes.....I go into the kitchen and hubby who is never to use the microwave had put 3 pancakes into it and put them on for 4 minutes.....they were burned black and the plate was so hot.....this man keeps me on my toes....ready to jump ....watching at all ...

  Our LBD and Parkinson disease journey They tell me it's because of a full moon. I don't know anything about the moon. But my hubby of 73 with LBD and Parkinson has been in some bad moods the last couple days. He wears a earing aid in one ear. he has always been able to change the battery but yesterday he put the battery in backwards and forced it closed and so it did not work he got angry and I had to take it to the clinic to get it fixed. Today he was shaving with straight razors cutting his face up...I said no use the electric razor and he got angry pulled his arm back like he was going to hit me. Yelling he will do what he wants. He broke down and cried yesterday because he said no one would listen to him. Not sure what that was about. Life has been hard the last week. And yes he is taking his meds but ...mercy...today we lost a friend and he has been crying and crying...sometimes this life is just a crazy hard mess...just saying..thank you for listening and if it...

  Well, according to Facebook it has been one year since we first saw the neurologist in Meridian. We were told then that hubby had lewy body dementia and Parkinson disease. We were told that he was in middle to late stage and he had 2-5 years to live. I have cried and prayed and tried to make things as good as possible. We trusted the Lord and with all your prayers we have made it through some tough things. I can say life is far better today than it was a year ago. Hubby is on mood meds and they really do help. He is on a med to help with hallucinations, dreams and acting out the dreams. You know we are a no med family but sometimes we have to do what is best for our loved ones. These meds have really helped us out. We will see what the next year has for us. But we want to thank all of you who have walked with us through this journey. Who never cut us down, made fun of us, or passed us by. You have all cared and prayed and we fill your prayers. Now off to another year. W...

  Do you ever get to a place in your life where you feel you are in limbo? Orders for our shop are filled ....no longer working for son in construction, no longer working retail, holidays are over, housework is all caught up, decorations are all down, not planning many camping trips this summer, due to hubby's medical problems and appointments, sons apartment is now in order, I plan school lessons and research all I need for homeschooling two grandkids, and we do homeschool each day. But the rest of the time I am in limbo...like I am waiting...for what?.... not sure. Today hubby and grandkids were all asleep and I wondered around and around the house. Restless.....nothing seems interesting...so I grabbed a book and set and read the whole thing.... somethings a stir within me but not sure just what.....Hubby has been really tired...not hurting...just not wanting to read, watch TV or anything...just sleep or stare at nothing....2025 what do you have in store for us?....actually ...

  A few days ago I wrote a post/article about our journey for the Lewy Body Dementia Caregiver Support Group....later I was contacted by a lady from New Jersey asking to talk...I told them I am only a wife not a professional of anything. But ones are reaching out to talk. Someone with a ear to listen and feel the same pain we all feel. Pray I can help them with trusting the Lord. That is all I can recommend is trusting God. I myself is discouraged and failing. Today I feel so heart sick about this awful disease. I tried to get hubby to go shopping for a little bit with me. He decided to go but his leg has been swollen, his ankle and his knee. He rode with me to the store and stayed in the car. We got home and he fell asleep. I cooked dinner and watched as he gasped for air as he was sleeping. Mouth open and breathing hard. Finally he woke up and walked around and got some dinner. But choked on the dinner and spit it all over him and the chair. Went back to his chair a...