Our Lewy Body Dementia and Parkinson Disease Journey

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Every time I give a good report about our disease something goes crazy. Last night was just weird. We still share the same bed...and before you all go crazy the reason is so I can know when hubby is struggling. If I put him in the guest room he could be all over the house and me not knowing he is even up. Since you all have been a part of our journey I have tried to be honest in everything and keep you all informed about this disease and also for the ones who are also going through this so you know you are not alone. Well, I was exhausted, so I went to bed a little before hubby. I was sound asleep when I noticed hubby struggling...like shaking, legs kicking, etc....this wakes me up and then hubby leans up and stares at me...and yells "what are you doing in my bed"...."this is my bed"...why are you here"....I say "what are you talking about"...he says "you know this is my bed"....I said "do you want to sleep in the guest room"...he falls back on the bed and cannot remember anything this morning about it. Good thing we are going to the neurologist next week. We will probably be making some changes around here....just to keep me safe....no nothing happened but who knows if he will get aggressive finding someone in his bed when he is struggling. Just something for you all to pray about and thank you all for listening. This disease has the craziest ups and downs...it's just exhausting but hubby is the one who is going through it so just pray for him.

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