Our Lewy Body Dementia and Parkinson Disease journey

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 A few days ago I wrote a post/article about our journey for the Lewy Body Dementia Caregiver Support Group....later I was contacted by a lady from New Jersey asking to talk...I told them I am only a wife not a professional of anything. But ones are reaching out to talk. Someone with a ear to listen and feel the same pain we all feel. Pray I can help them with trusting the Lord. That is all I can recommend is trusting God. I myself is discouraged and failing.

Today I feel so heart sick about this awful disease. I tried to get hubby to go shopping for a little bit with me. He decided to go but his leg has been swollen, his ankle and his knee. He rode with me to the store and stayed in the car. We got home and he fell asleep. I cooked dinner and watched as he gasped for air as he was sleeping. Mouth open and breathing hard. Finally he woke up and walked around and got some dinner. But choked on the dinner and spit it all over him and the chair. Went back to his chair and fell back to sleep. I set here watching him and crying....whatever make our lives turn into this. I feel sad but I hate these diseases....just saying. I am not sure where we went wrong or what we did to go into this journey....but we are here and I can only trust the Lord to hold our hands...

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