Our Lewy Body Dementia and Parkinson Disease journey #36

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Things for us are on a even roll....hubby has been doing pretty good. His legs are getting bad and his knees hurt a lot...this disease they sometimes don't know they have a hurt...when they do...he thinks when something happens he will say "that crazy thing happens every day at the same time" when it really doesn't....he has difficulty in sequencing activities like what happened now and what is next....his strength is getting worse....it is hard to watch everyday as I lose a little more of him....he can no longer go to the basement for laundry....he can't cook....can't empty the dishwasher or mow the lawn....I am learning to cope with this...learning to step up....but the hard part is he doesn't realize he can no longer do it because he can't really remember doing it...he claims he is showering everyday when I have to make him shower....causes an argument but we get it done....he goes to work but he mostly just sets and watches...he will help once in a while but mostly not....I am making some hard decisions as to sell the home which I love and just making some major decisions....I depend a lot on my faith....but for now we got this and will just keep on doing our best to live the best we can...family is coming together this weekend to honor him for his birthday while camping....we need the fun right now so excited for that...God bless and take care....try not to let this disease destroy your faith and love for each other....we sure are trying...



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