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Our Lewy Body Dementia and Parkinson Disease journey #101

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  Today has started off....with me laughing, crying and walking away. First I find hubby standing in the kitchen holding a pair of pants. I say "What are you doing?" he says trying to find out how to get into these......so I get him in the bedroom find him pants...I walk away and finally go back to find him with all his pants out of the closet on the floor...."I say now what are you doing?"....he says trying to find the ones you want me to wear....mercy.........then he is calling for me in the kitchen....I find him at the coffee bar saying "where do I put the grounds"....he is trying to use the Keurig....."no Brent no coffee grounds you use a k cup:.........back to the socks........socks everywhere.....but he thinks not one of them is the right one.......he goes down to the laundry room......I say "brent you are not to do laundry any more....do not".........well....I go down as he is yelling up the stairs what is with all these clothes...

Our Lewy Body Dementia and Parkinson Disease Journey #100

  Today was a sad day not a bad day just sad. I have been trying to get the last window in our house done before winter but always something seemed to come up and it didn't get done. So today was the day. Hubby and I worked together and got all 10 windows in except one when my wrists were broke and I was in casts our grandson Brayden helped grandpa. But today....hubby would try but would get so confused. He didn't know where to put the old boards....what to do with getting me tools. Just so many things we always did together. This time I was on my own. I would try to explain things to him but it would just confuse him more. Makes me sad....he is still leaving me...little by little.....and I already miss him and he is setting in his chair.....terrible disease.

Our Lewy Body Dementia and Parkinson Disease Journey #99

  Well....I am happy to report I thank we are on a level plane.....things are going along good...Hubby sleeps a lot anymore but most of the other symptoms are under control. He even mowed a little more on the lawn yesterday before he went back to bed. Today he got up ate breakfast got dizzy and went back to bed. Even the grandkids could not get him up. But he is not in pain...no swelling, no excessive confusion, no yelling, no aggressiveness.... just on a level plane.......but I will take it. Thank you for all who have been asking. God bless and thank you for your prayers.

Our Lewy Body Dementia and Parkinson Disease journey #98

  Tonight, I am a tired old lady. Been busy ...the trip to Wallowa was stressful. When we were at the lake, we enjoyed it and being around the campfire was great. But driving over and back was hard. Hubby has a hard time being in the car for many hours. Since we have been home he has slept a lot and his legs have been swelling again. He went to work with me today for half a day but slept in the car in the shade...so I brought him home and he went to bed. He has been telling people that his body is just giving out on him. And it is. He went grocery shopping with me this evening and that was to much for him....he went to his chair and fell asleep again. That is about how our days are going...he sleeps a lot and I try to keep things going around the home...cleaning camper and getting things ready for Fall. This marriage is a one-person marriage right now...but I am so glad...he is still here. We told Wallowa goodbye...and it was sad but alot of people we know didn't get that

Our Lewy Body Dementia and Parkinson Disease Journey #97

  Well we had a great weekend trip to wallawa lake...hubby did good with the long trip over but the second day he slept all day....the third and fourth day's he did great....I didn't push him just let him enjoy the trip....kids and grandkids came over and we all had fun....we couldn't have campfires so daughter brought her propane firepit and it was great....this morning the wind came up fast and then the rain....I had the camper ready to go so we were prepared...trip home was stormy at first and then just cloudy.........got home and now resting up...tomorrow we will empty out maizy and get her ready for winter...no more trips out of town for us camping....we will just take her down to Hells gate in the spring...if we are both still here....before we left today Jerry Vantrease came over and prayed for us....we haven't seen him and Janette for over 3 years but when he came to camp we were family of God again....he blessed us so much with his prayer....and I got a large i

Our Lewy Body Dementia and Parkinson Disease Journey #96

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  At wallawa marina. Been so nice .. hubby has had a hard time. He wants to keep up with everything but then gets sick

Our Lewy Body Dementia and Parkinson Disease Journey #95

  Well it's 2.59 am hubby woke me up with yelling and fighting the air.. I got him settled down and he said he was being attacked by two guys at a truck stop. He had a bad day yesterday. Lots of confusion....praying for our camping trip...leaving today... guess I need coffee..sleep on friends...God bless.