Our Lewy Body Dementia and Parkinson disease journey...changes again..november 20th

 

The last few weeks have been going along pretty good. Lots of confusion and hubby not hearing much...he keeps getting real tired. But he has been ok. Night before last we had issues. The problem with Lewy Body is you never know what can set off an issue. Apparently hubby got something off TV, because that night he begins yelling about 2 am...not screaming but yelling. I go to the door of his room. He begins to cry still asleep and then he points a finger at me and starts yelling gibberish...I say "Brent Brent wake up". He finally does and tells me that communists were trying to get to the kids. Had to be from the TV. Last night we were sound asleep and he begins to scream, I hear him throwing his body around hitting the wall the bed shaking and him yelling. To be honest it kinda scared me. I go to the door of his room and say again "Brent wake up. I then turn the light on and say Brent wake up. Trying to do the steps the neurologist tells me to do. He wakes up looks at me and yells "where have you been". Why are you just getting home. I say real quiet Brent I have been in bed you are dreaming. No, he yells you have been at a Missionary meeting all night and left me. One I haven't been to a Missionary meeting in over 20 years. I think he is getting stressed over the family talking and trying to get him used to the idea of some major changes that will be taking place. I think he is so confused. But no idea how his mind works with this disease. During the day is pretty lifeless...wants to just sit as he says he is comfortable and that is want he wants. Life goes on and we will keep doing the best we can. But if someone needs to talk to you and they are dealing with these diseases please just stop and let them talk. They need to be able to express all the crazy feelings they have about all the caregiving crazies. God bless.