Our LBD and P disease journey.........#84

-

 

We were on our way to the hospital at 3:30 am...the other morning...getting hubby into the car and him not able to bend his knee was an ordeal...I finally got him in and he looks at me and says "I think the Lord is preparing me to take me home to Heaven".....I said "what" ....no way it's just your knee.......he looks at me and says "no I mean everything" and then he turns and doesn't say anymore......tell me how do you deal with that.......what rushes to your mind is all the ways he has gone downhill.......all the confusion....doing things crazy...all the times of aggression...anger...and then I think about all the grandkids...fun......moments of tenderness and goodness.......and I tell him "well, if you go I want to go too".....you can't leave me here alone....50+ years........we are in this together........

Comments

Post a Comment

Popular posts from this blog

Our Lewy Body dementia and parkinson disease journey #22 house

-
Image
 We are on this journey and it seems to be a whole lot involved with it.  Decisions that a person must stop and face.  One is on my mind today and that is ......our home.  When we purchased this home 21 years ago we were thinking about living in it for about 5-8 years and then selling.  But it became home.  So we have stayed.   Now, that we are dealing this these diseases it's time to take another look at our home.  It is two levels, so stairs....and it also has a drop down extra living room with 3 steps down and on the other side a two step up to kitchen.  Now with hubby starting to have walking and standing issues...and dizzy problems.  Time to rethink.. Of course I think it's no problem for me...I got this but the laundry room is in the basement with two more bedrooms, family room and pantry.  So I go up and down these stairs all day long.  And I am getting older so decisions. Do we sell?.....do we stay put until things get real bad?  do we let the kids just take over?.....d
Read more

Removing and replacing our old pathway

-
Image
 We moved into our home about 15 years ago at that time we decided to place a walkway down through the yard to a firepit.  Our family loves to sit around the backyard fire and roast hotdogs and marshmallows.  We haven't done much to the walkway except spray it once in a while with weed kill but today we decided it was time to remove and repair.  So we began to dig out the bricks..it was amazing how some were buried and some were broken.  They all were beginning to sink down deeper and deeper. There was a lot of moss that had even grown over the top of them.  But hubby and I worked together and got them all dug up.  The pathway went from the deck to the firepit ring.  All of these bricks have been recycled we would watch for free ones.  Sometimes just driving down the road there would be bricks with a sign take all you want.  So some of these bricks have different says on them.  We also enjoy using our dutch ovens.  So son showed us how to maybe add a dutch oven are
Read more

Our journey with Lewy Body dementia and parkinson disease #1 beginning

-
Image
 Late in the year of 2023 my hubby started loosing a lot of weight for no reason just not hungry.  Once in a while he complained that his stomach was hurting.  So we scheduled doctor appointments ....doctors checked him out, ran blood work, scans, MRI's, etc....and every test came back nothing was wrong.  He was fine.  So we would leave and I would notice things...something just wasn't right.  Also, son kept noticing that his Dad's hand would shake sometimes....then his eye began to twitch....so I took him to the eye doctor and he was fine.  Again more MRI's and nothing wrong.  The eye kept twitching and the hand kept shaking. Our primary doctor said "Well, we can send him through a bunch of tests, but the out come will be the same".  Nothing we can do.  I wanted answers. So, a few months later in about November hubby almost collapsed at Walmart while walking.  He was sick.  I brought him home and he went into the bathroom and immediately came out and said &qu
Read more