Our Lewy Body Dementia and Parkinson Disease Journey # 56

-

 

For those of you who are following our journey I want to just let you know how a little of our day goes...for those who are not following please just move on to a different post.....
Our morning....me...let's go out and check the antifreeze in the pickup
hubby...ok....so he goes out and raises the hood...and stands there
me....now take the cap off the radiator and let's see
hubby takes cap off and stands there just looking...finally I say what are you doing...
hubby...I have this lid and can't find what to do with it
me...it's for the radiator.. check the fluids
hubby....just looking at the motor and standing there
me....how is the fluids
now....all of a sudden he is him and he says "oh it's good we don't need any....and we talk a little about the truck
then he stares off to the back of the truck
I say what you doing.....
hubby...I don't know
me. Well let's close the hood
now...he is angry and says "it's all your fault. You never let me do anything...I know what i am doing...just leave me alone...you are the one causing all of this on me...more and more anger..
I say .."Brent stop"...no more.... neighbors are listening to you...calm down and let's go inside
he looks at me and turns and goes in
the anger is over for him but not for me....his words were mean and cruel I didn't even post all he had to say
This goes on over and over during the day...on and off....not only am I watching his body go down....and him slowly fading away....I endure his meanness and cruel words........I know some of you know what I am saying.....I know you know we have to pick out our good moments....but yes sometimes all we can do is cry...and lean on the Lord....he has this and us in his hands and I will trust.......

Comments

Post a Comment

Popular posts from this blog

Our Lewy Body dementia and parkinson disease journey #22 house

-
Image
 We are on this journey and it seems to be a whole lot involved with it.  Decisions that a person must stop and face.  One is on my mind today and that is ......our home.  When we purchased this home 21 years ago we were thinking about living in it for about 5-8 years and then selling.  But it became home.  So we have stayed.   Now, that we are dealing this these diseases it's time to take another look at our home.  It is two levels, so stairs....and it also has a drop down extra living room with 3 steps down and on the other side a two step up to kitchen.  Now with hubby starting to have walking and standing issues...and dizzy problems.  Time to rethink.. Of course I think it's no problem for me...I got this but the laundry room is in the basement with two more bedrooms, family room and pantry.  So I go up and down these stairs all day long.  And I am getting older so decisions. Do we sell?.....do we stay put until things get real bad?  do we let the kids just take over?.....d
Read more

Removing and replacing our old pathway

-
Image
 We moved into our home about 15 years ago at that time we decided to place a walkway down through the yard to a firepit.  Our family loves to sit around the backyard fire and roast hotdogs and marshmallows.  We haven't done much to the walkway except spray it once in a while with weed kill but today we decided it was time to remove and repair.  So we began to dig out the bricks..it was amazing how some were buried and some were broken.  They all were beginning to sink down deeper and deeper. There was a lot of moss that had even grown over the top of them.  But hubby and I worked together and got them all dug up.  The pathway went from the deck to the firepit ring.  All of these bricks have been recycled we would watch for free ones.  Sometimes just driving down the road there would be bricks with a sign take all you want.  So some of these bricks have different says on them.  We also enjoy using our dutch ovens.  So son showed us how to maybe add a dutch oven are
Read more

Our journey with Lewy Body dementia and parkinson disease #1 beginning

-
Image
 Late in the year of 2023 my hubby started loosing a lot of weight for no reason just not hungry.  Once in a while he complained that his stomach was hurting.  So we scheduled doctor appointments ....doctors checked him out, ran blood work, scans, MRI's, etc....and every test came back nothing was wrong.  He was fine.  So we would leave and I would notice things...something just wasn't right.  Also, son kept noticing that his Dad's hand would shake sometimes....then his eye began to twitch....so I took him to the eye doctor and he was fine.  Again more MRI's and nothing wrong.  The eye kept twitching and the hand kept shaking. Our primary doctor said "Well, we can send him through a bunch of tests, but the out come will be the same".  Nothing we can do.  I wanted answers. So, a few months later in about November hubby almost collapsed at Walmart while walking.  He was sick.  I brought him home and he went into the bathroom and immediately came out and said &qu
Read more