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Our Lewy Body Dementia and Parkinson disease journey

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Yesterday we worked really hard and put in a long day. We got everything inside and out gone from the house. This morning we were there by 6 am mopping, cleaning and getting ready for the next step which is the Real Estate comes in. She arrived and walked through the house and complimented me on it being empty and real clean. Just a few more days and it will be on the market...now praying that we get just the right number....to finish everything off. We want to be fair with the buyers but also know what we need so we place it in the Lords hands. We are exhausted but needed to go get groceries. Coming home is so nice as it is raining and we have a nice carport to drive into. Hubby has held up real good until today. Last load of groceries I here a loud thud and then moaning and look hubby is laid out on the deck and steps. Somehow he fell forward dropping the groceries, hitting his head on the screen door and was half on the deck and half on the steps. He never broke anything ...

Our Lewy Body Dementia and Parkinson journey

today we were working hard...nothing was working right it was hot and I am tired....I got really frustrated at hubby as he was trying to figure out what I wanted done I was trying to explain and finally I had to just say. Please just go away and leave me for 10 minutes. Just walk away. He had no idea what he did wrong. Me I was a mess. Hot, sweaty, tired and frustrated. I was the one going bonkers....hubby was just trying but not trying. Anyway we got it done after 10 minutes I went to find him and we worked together and got it done. Yes sometimes I am the mess.....now he is exhausted and just wanting to set and rest....I think we need a few days off....so planning a road trip for next week....time for some fun.

Our lewy body dementia and parkinson disease journey

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  Our lewy body dementia and parkinson disease journey We have been working real hard to empty one house and set up another we start at 5 am and work until 7 pm. So much after 23 years in one home. Today we are trying to move a small freezer into our new home. Grandkids are sick so can't get much done. Laptop not working so I hen peck my phone. Hubby came inside with blood all over him he doesn't know what happened when I got him cleaned up he had a big cut on his arm. Well back to work want to get the house on the market as soon as possible

Our lewy body dementia and parkinson disease journey

  Our lewy body dementia and parkinson disease journey So many trips. .up at 6 am and over loading truck...we try to make 5 to 6 trips a day...hubby has been a trooper in helping but yesterday I couldn't move had to take the day off but we are a team and getting it done...one load today because of doctor appointments but hope to get 3 to 4 this evening. Mercy I am old...hubby woke me up at 3 something screaming. He was dreaming he was on fire.. eventually life will settle down at least that is what I keep saying.

Our lewy birthday dementua and parkinson disease journey...lost........

  Our lewy birthday dementua and parkinson disease journey...lost........ tonight i lost hubby he was to take the garbage to the truck but he decided to take it home to our garbage can...and he was gone. I am driving up and down the streets with grandkids crying my heart out...I had tried so hard to get him to except this house as home. I call the kids val had just got home in Nampa Jon and Jeremy both at work. Jon getting ready to send sue and grandkids when I find him a street over at a house he claimed we used to live in. He was going to leave the garbage there when he saw me. Thank God no one was home when my hubby showed up with his garbage claimed we lived there. Mercy.

Our Lewy Body Dementia and Parkinson disease journey....second night in new home...

  Our second night was crazy......we were all exhausted...hubby was in my room...he tried to help yesterday and maybe that was the problem. But he was asleep...we all were and then I hear crazy noises. I see hubby in the corner of the room he had come around the bed and was trying to find the door to go to the bathroom and was trying to move boxes to get to the dresser...I get him turned around and we went back to sleep. He wakes up yelling and throwing his arms....I am trying to get him settled....and not wake the whole house, he settles down and we go back to sleep. I hear more noises a little later and hubby had come around the bed and was now in the closet...nothing in the closet but it has mirror doors which is common for older mobile homes...he is hunched down and trying to move around I say what are you doing". He says trying to find the bathroom....good grief...tonight I will leave lots of lights on.

Our lewy body dementia and parkinson diasese journey ...bought a new home

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  Well...I did it. Signed and paid for my first house. So unreal. I have never purchased anything that cost more than a couple hundred dollars on my own. Hubby did it all. Today I signed my name and almost cried. I went to the new house and we began to make a few changes. I feel like I am in a campground and just visiting and then going back home. Grandkids are all having a hard time. Everyone of them remember crawling up the steps from the family room to the TV room. Then later as they grew they would begin to jump the steps. So many memories for everyone. We have worked so hard on this home to make it ours. I struggle with everything now because I feel I am alone in all the decisions and steps. Jon and Val and Jeremy have been here helping but hubby just can't. I know a lot of you have lost your loved ones and are struggling. I understand. Hubby says about 15 words all day. No ideas, no comments, no interest. It's so hard. I want to turn to him for answers ...