Our Lewy Body Dementia and Parkinson disease journey...trip to lake

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We were so excited to take a day away from everything and just go have some fun. We traveled 2 hours up and down some crazy hills but made it to the lake in Oregon. We met our daughter and her family there and had a great time at her camping spot. Her family had got a new camper and had camp all set up. Hubby just set and enjoyed everything and when we walked up to the go carts and golfing son Jon pushed him in the wheel chair so hubby didn't have to walk. We rode back to the campsite later and SIL Nathan cooked everyone hamburgers and brats. Just a great time and then we left to drive home. That's when hubby started going downhill. I had to drive slow the hills are just crazy ones, it was a total dark out night and deer were everywhere in the road. Steep cliffs on the side of the road all the way so I drove real slow. We got home and hubby went straight to bed. Half hour later he got up and could not walk to the bathroom legs were swollen. I got him there and he said he needed tylenol...for pain. He never complains of pain. All night him moaning and crying and in pain. He didn't sleep and neither did I. After tylenol would kick in he would rest. No more day trips for him. Or me now for a while. He is finally asleep...me I just can't seem to get rested. Always exhausted. But no complaints...loved being with family yesterday. Made good memories....hubby well his story is still in the making. Only God knows the next steps and I trust the plan of the Lord completely. Now for some more coffee.
May be an image of 2 people, people camping and people smiling

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