Our Lewy Body Dementia and Parkinson disease journey.....assisted living

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At this stage in these diseases our neurologist says Helen get help...check into places for hubby as the disease progresses. Months ago she said start now!!!!....so I did. We researched went to everyone we could find local, as I wanted to keep hubby close. Now right now we are fine...I got this but as his body goes down it may get to where I cannot do this. So we found a place and was on the list and excited and to find out. They sold the place and now new owners....and now new rules.....and now the government makes changes that take place in January 2026. We are not looking for right away but for the future. Most of them for memory care want a spin down of $7000- $9000 per month for up to 2 years. Which means you pay out of your pocket for 2 years and then maybe...maybe a program will step into help. But more than likely not. Which will put a lot of families in harms way. Me I am working hard and making changes to accommodate hubby changing. With kids helping so far so good. But a lot of people are going to hurt. Medicaid is taking away a lot of places for people and assisted living places are going away from Medicaid totally..I am constantly being told to go south...check Boise, Nampa or Meridian. I want hubby close. So I am doing the only thing I know to do....PRAYER...I know God can change things but also I know if he wants hubby somewhere it will open. That at this point is all I can do...so I PRAY...DAY AND NIGHT....but until then I keep him close and do what I must do....God has been one step ahead of us each time and I depend on it now..

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