therustycupboard

  Our LBD and Parkinson disease journey Today I had fun out running around getting some items that I needed for ...an outing with grandkids....I almost forgot to do it and that is get pics of Santa with the grandkids...so I was running around getting clothes for them...I feel I was so blessed with my purchases and prices...felt bad that I was out and hubby was just setting at home. He doesn't even want the TV on he just sets and does nothing. I try to hurry back as fast as I can, and he is always just waiting for me. But my conscience always hurts leaving him.... then I was so excited to show him my buys and he isn't at all interested. But I set and explain each piece as if he wants to know everything. I sure do miss hm and he is setting right there. It totally makes my heart hurt. Yes, I am counting my blessings that he is here for Christmas.....but he isn't here....no one understands these diseases but someone who is facing them. All I can do is trust and pray the...

  Our LBD and Parkinson Disease Journey We have 4 children and 12 grandchildren....we also had a day care for foster children and we had 9 of them pass through our home....we were the tumbleweed day care. So I could pretty much guess what was wrong with a child. At least have something to go on. But with this Lewy Body Dementia Disease things change daily and it's such a guessing game. Hubby has had back problems for about 2 months now. We have the neurologist involved and she has offered her suggestions, and we have tried them all. She says it is not the meds but could be the stage he is in. Last night he was setting in his chair. A chair our son got for him ...this chair can do anything. Can even throw him out of it but also does everything else. Now with Lewy Body Dementia the short-term memory is what goes and changes. This man can tell you where to get gas and where to eat anywhere across the states. But has no idea what happened 10 minutes ago. Well last night I wa...

  I have found the hard way that there are two kinds of shopping trips. One is major business-like.... certain groceries, certain errands etc. that I must do alone. Because......I have found I have my list and I am focused in on what I am doing and then hubby.....no matter who is around or where we are decided to yell or talk real loud and say..."we have to go home right now"...well, what ever you do ..DO NOT ASK WHY.....because he then proceeds to yell or talk back real loud.... because I have to go P Mercy.....and he doesn't think there is anything wrong. People stop and stare and you want to crawl under the table.... it's a lot different having a 5-year-old say it than a 73-year-old...or he gets in the isle and stands there and won't move and people are trying to get around him and he gets angry with the people. So what you do is make certain shopping trips all about him. Then you are prepared to act fast and be ready for anything. Lists are for when sh...

  We had a great Thanksgiving....was just hubby and I, son and his two kids.... a quiet nice dinner...then our other son and his family of 5 came over and we had desserts and played a card game. was a lot of fun.... new game and just relaxing...Hubby did not play just watched us all. Today hubby has been really tired and has a stiff neck and some pain. So, he was up for a little while and then went off to bed......he has been spending about half the day in bed lately. I have the grandkids today as son is working so we will play, eat and just watch TV. Both grandkids have head colds, so I am doctoring them and just relaxing. Been pretty tired today. ..hubby has been talking more about his diseases. We both know that time is limited but we are just going to keep on keeping on. Trying to count our blessings and enjoy each day we have. God bless and thanks again for following our journey.

  Things were going where hubby just wanted to stay in bed for four days and nights. Pastor Phil came and prayed for him and he got up took garbage out and the next day he was up took a shower and was alert. This was good for a couple days. Then he has taken back to the bed. Today I went into the bedroom at 10:30 am and said "Brent you have to get up...he says "No I am going to rest". I said "no the doctor says you have to keep moving...so you have to get up and move around and keep your muscles working". It was hard but he got up took a shower and I have to sneak it to get the dirty clothes so he doesn't put them back on instead of the clean ones he takes into the bathroom...so we got him in clean clothes and then the battle of him brushing his teeth...he says "I did early this morning...no I say you were not up....so finally I convinced him he had to brush his teeth.......finally got him into a chair...but not moving.......this is so hard...he j...

  update.....doctor said an internal part on hubby's hearing aid failed...but the aid is still good....so the part is being ordered and is free due to being a recall.........we only have to pay for the service call....so hubby will get his hearing aid back and we won't have to have an extra expense....God is looking out for us.....cha ching..

  Well, hubbies hearing aid.. is not working...how long has it not been working....who knows....he has no idea.....so do I spend the money for a new one....or just not worry about it....either way...he didn't really use it when he had it in his ear...he always turned it real low...but also has problems understanding what is said when he hears it......decisions.... (doctor will let us know the cost of a new one)