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Our Lewy Body Dementia and Parkinson Disease Journey #99

  Well....I am happy to report I thank we are on a level plane.....things are going along good...Hubby sleeps a lot anymore but most of the other symptoms are under control. He even mowed a little more on the lawn yesterday before he went back to bed. Today he got up ate breakfast got dizzy and went back to bed. Even the grandkids could not get him up. But he is not in pain...no swelling, no excessive confusion, no yelling, no aggressiveness.... just on a level plane.......but I will take it. Thank you for all who have been asking. God bless and thank you for your prayers.

Our Lewy Body Dementia and Parkinson Disease journey #98

  Tonight, I am a tired old lady. Been busy ...the trip to Wallowa was stressful. When we were at the lake, we enjoyed it and being around the campfire was great. But driving over and back was hard. Hubby has a hard time being in the car for many hours. Since we have been home he has slept a lot and his legs have been swelling again. He went to work with me today for half a day but slept in the car in the shade...so I brought him home and he went to bed. He has been telling people that his body is just giving out on him. And it is. He went grocery shopping with me this evening and that was to much for him....he went to his chair and fell asleep again. That is about how our days are going...he sleeps a lot and I try to keep things going around the home...cleaning camper and getting things ready for Fall. This marriage is a one-person marriage right now...but I am so glad...he is still here. We told Wallowa goodbye...and it was sad but alot of people we know didn't get that

Our Lewy Body Dementia and Parkinson Disease Journey #97

  Well we had a great weekend trip to wallawa lake...hubby did good with the long trip over but the second day he slept all day....the third and fourth day's he did great....I didn't push him just let him enjoy the trip....kids and grandkids came over and we all had fun....we couldn't have campfires so daughter brought her propane firepit and it was great....this morning the wind came up fast and then the rain....I had the camper ready to go so we were prepared...trip home was stormy at first and then just cloudy.........got home and now resting up...tomorrow we will empty out maizy and get her ready for winter...no more trips out of town for us camping....we will just take her down to Hells gate in the spring...if we are both still here....before we left today Jerry Vantrease came over and prayed for us....we haven't seen him and Janette for over 3 years but when he came to camp we were family of God again....he blessed us so much with his prayer....and I got a large i

Our Lewy Body Dementia and Parkinson Disease Journey #96

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  At wallawa marina. Been so nice .. hubby has had a hard time. He wants to keep up with everything but then gets sick

Our Lewy Body Dementia and Parkinson Disease Journey #95

  Well it's 2.59 am hubby woke me up with yelling and fighting the air.. I got him settled down and he said he was being attacked by two guys at a truck stop. He had a bad day yesterday. Lots of confusion....praying for our camping trip...leaving today... guess I need coffee..sleep on friends...God bless.

Our Lewy Body Dementia and Parkinson Disease journey #94

  Today has been relaxing...we are home from our trip to our neurologist. Hubby has been not feeling well and sleeping a lot. I think it has to do with his meds being upped....his leg is swollen but not much can be done. So he just rests. He sets on the patio and sleeps in his chair...I go out and check on him and give him drinks and snacks. No talking ...he just sets. I am in the house doing housework. We live to different lives in the same house. Our neurologist understands the problem. But this is how it will be. I am learning my new role. I care for him and he tries to keep on keeping on. His moods come and go....when he isn't asleep he is cranky. Not his fault and I am learning how to deal with it. But this afternoon the professionals came out of the woodwork....calls....all wanting to help in some way....but not help....well Helen you don't qualify for this...but it is a good program....well Helen just wanted to let you know about this program but insurance

Our Lewy Body Dementia and Parkinson Disease Journey #93

  Getting everything ready to leave for wallawa on Thursday...hubby can't walk today...guessing it is from the ride home yesterday from Nampa...this weekend taking the dodge ram so he will have more room plus pulling Maizy Belle...so if he needs to rest he can and we will stop more often....I know most of you think I am crazy but we always go the long way to wallawa...we love the trip through all the farm land...and it's not so stressful as rattlesnake grade....this is our last time for this trip so going to make the most of it....meeting daughter and her family there so that will be fun....we always camp next to each other and since I am only 13 feet long we always turn my camper so our doors go out together and we just make the area between all ours....plenty of room if anyone wants to drive over to visit....making stew and homemade bread for dinner and working on the house...God bless and have a great Labor Day week........