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  Our lewy birthday dementua and parkinson disease journey...lost........ tonight i lost hubby he was to take the garbage to the truck but he decided to take it home to our garbage can...and he was gone. I am driving up and down the streets with grandkids crying my heart out...I had tried so hard to get him to except this house as home. I call the kids val had just got home in Nampa Jon and Jeremy both at work. Jon getting ready to send sue and grandkids when I find him a street over at a house he claimed we used to live in. He was going to leave the garbage there when he saw me. Thank God no one was home when my hubby showed up with his garbage claimed we lived there. Mercy.

  Our second night was crazy......we were all exhausted...hubby was in my room...he tried to help yesterday and maybe that was the problem. But he was asleep...we all were and then I hear crazy noises. I see hubby in the corner of the room he had come around the bed and was trying to find the door to go to the bathroom and was trying to move boxes to get to the dresser...I get him turned around and we went back to sleep. He wakes up yelling and throwing his arms....I am trying to get him settled....and not wake the whole house, he settles down and we go back to sleep. I hear more noises a little later and hubby had come around the bed and was now in the closet...nothing in the closet but it has mirror doors which is common for older mobile homes...he is hunched down and trying to move around I say what are you doing". He says trying to find the bathroom....good grief...tonight I will leave lots of lights on.

  Well...I did it. Signed and paid for my first house. So unreal. I have never purchased anything that cost more than a couple hundred dollars on my own. Hubby did it all. Today I signed my name and almost cried. I went to the new house and we began to make a few changes. I feel like I am in a campground and just visiting and then going back home. Grandkids are all having a hard time. Everyone of them remember crawling up the steps from the family room to the TV room. Then later as they grew they would begin to jump the steps. So many memories for everyone. We have worked so hard on this home to make it ours. I struggle with everything now because I feel I am alone in all the decisions and steps. Jon and Val and Jeremy have been here helping but hubby just can't. I know a lot of you have lost your loved ones and are struggling. I understand. Hubby says about 15 words all day. No ideas, no comments, no interest. It's so hard. I want to turn to him for answers ...

  Well, we are doing pretty good here. Hubby has been real mellow and sleeping a lot. But real quiet. I have been working a lot and from early morning until late evening...lots to do. Daughter is almost here and will take over on the packing and moving. We have a couple meetings while she is here to go to, two birthday parties, and working on both homes. But we will get it done. Hubby helped me fold a tarp and then went in and went to bed. Not much strength anymore....he used to be so strong. Anyway will try to post but for the next 4 days we will be super busy. God bless stay cool and healthy everyone...

  Please say a prayer for hubby today...his feet are swelling bad again. Doctors think it is his amlodipine for blood pressure causing it. So they had us take him off for a few days his blood pressure went crazy even though his other meds are supposed to help lower his pressure. So they say put him back on and make an appointment and the earliest they can see him is in 20 days...mercy. So he isn't feeling good ..thanks for the prayers...

  Took hubby to breakfast at taco time loaded biscuits and gravy and tater tots grande pretty good All reactions: 32 Susan Hoyt, Helen Craig and 30 others

Here is a topic no one wants to talk about but it's one of the things with these diseases. Our journey is taking a turn...I keep going into hubbies room and it smells. I have had to wash his sheets and bedding everyday. Things are not real bad but they are getting worse. No one wants to talk about bowels not being able to be controlled. But it happens. Several times now so I was talking with daughter and she found these at Target and I think they would be something hubby would wear for the nights. It's not his fault ...in fact he has no idea it is even happening until it does. So I need to prepare him so it won't ruin the bed or make a lot more work for me. He has been pretty quiet since his out rage. Mostly just setting...doesn't want to leave the house and is confused when I ask him anything. I am working on some plans for him...it is hard for me to do but if the Lord allows I will do it. Will let you know our next step as soon as I can. For now I get the key...