therustycupboard

I have some of the best friends....one friend is out of town but still had hubby and I on her heart and texts me. She was praying...I really needed the prayers right then. Heart of God. Yesterday a friend texts me and says "I was driving home from Lewiston and had you really on my heart. She prayed all the way home for us. Heart of God... ......I am not sure if it's us moving and all the meetings and boxes and rearranging but hubby has been real aggressive...right in my face exploding...yelling, shaking, turning purple and just plain mad. ..bringing his arm back as if to slap me....he never....but he was about to.... All because I asked him to move to see if he had set on a letter. Mercy....off to a crazy day....my nerves are shot...I am shaking and crying. .Lord have mercy .Lord give me mercy, patience, grace and everything I need to handle this journey. Amen

  My hubby of 51 years was a big strong truck driving man. He drove over 35 years doubles, triples, haz mat semi trucks across the united States. He would be gone sometimes for a month at a time but would call every night to talk with me and the kids. He loved driving across the country....now he has lewy body dementia and parkinson disease. Yesterday I hear the truck start up and go running hubby thought someone told him to back the truck up and he was almost into the neighbors fence. He hates not getting to drive. Well, daughter has been working on a small book which will come out in sequels...mostly just the chapters that hubby and I are living. No medical helps...no professional helps....just us walking through this journey together. The book will come out in sequels and will be available on Amazon...won't cost much just enough to cover costs. We are praying these small books will help someone else that is going on this journey....what little that will be made which will ...

  Today was kinda weird...I needed to go to walmart to get hubby's meds and he wanted to go. So we walk in and he wants to set down so we go back to the pharmacy and they have a bench there. I get the meds and need to run to the lawn and garden center so he waits there for me. I come back and get him and he is pushing the cart which doesn't have a lot in it....I am just walking and I look back at hubby ..he is leaning down on the cart and white as a ghost. I said "what is going on you look like your having a heart attack"...he says "I am super tired" so I take him back to the pharmacy where he can set down and rest. I let him set for about 15 minutes and we leave the store. He comes home and goes to bed for about 1 hours and got up just fine...been just himself all afternoon....my guess is...and it's just a guess...the meds were bringing down his blood pressure a little to fast..but that is just me I took his blood pressure and it was 133 over 83.....

  When daughter Val was home and son Jon was here we all went to a lot of appointments and tried to get a few things settled. It felt like the hand of God was moving right before us each step of the way. But step #4....we took a tour of a facility that would deal with Lewy body dementia and Parkinson here in the valley. I won't say which one yet as more needs to be worked out. This is just because our neurologist told us to prepare...poor hubby with these diseases more issues will keep arising. So...I had to start dealing with the state of Idaho...mercy....what an ordeal...we even went to our elder attorney for information and backing on some issues. We have not had anything to do with the state of Idaho in over 45 years other than social security which was a breeze to get. But our Medicaid journey was to begin. Calls from the state with some not to nice of people....and me with a thousand questions was getting no where. Daughter was out camping and she does a lot of our p...

  Gave hubby his blood pressure meds and notified doctor ..waiting for response. Last night hubby had a calm night but this morning he got up and was watching TV and resting so I took his blood pressure and it was 195/107 now he has had high blood pressure before and also I know it takes a while to get the meds back into his system. But will let you know what the doc has to say and if he will change the med....(update)....doctor got back to us and we are to keep him on his blood pressure meds and make an appointment for a new med....

  Well...legs are better. But other things are worse. Hubby has had a bad time the last 3 nights...neither of us has had sleep. Bad dreams and hallucinations....also they said take him off the blood pressure meds to see if the swelling in legs and feet goes down and check him and make sure it stays below 140/90...well tonight...... he has acted zoned out all day so I just took his blood pressure and it is 181/108....mercy....just can't seem to win...contacted doctor....and yes our blood pressure machine was cinchonized to the doctors...so it should be pretty accurate...

Today has been a crazy day...hubbies leg has been red and swollen so we went to see our primary doctor...who then sent us to get an ultrasound at the hospital. The tech went over his legs for 45 minutes with the machines...then she said I need to get a second opinion....and she left....son Jon texts and says mom I am praying he is on a roof putting a new roof on and doesn't know what is happening, daughter is camping out without cell service and texts mom I am praying and a family friend Stacey texts me I am praying all while the tech was out. The new tech comes in and after 15 minutes says I don't see what you were seeing. So you can go home we don't see anything serious....yes...the hand of God had moved...yes his leg is still sore but he went out tonight and helped me hook up the camper for the last time....step #2 was selling Maizy Belle....yes I sold her she is home at her new home in Colfax getting a new name. I didn't even feel bad as they pulled her away. I...