Posts

Our lewy body dementia and parkinson disease journey.#53

  .... we have been working hard on a small house...manual labor of siding..roof..windows..paint..shutters...today was a long day...we worked hard. But it took a toll on hubby...I keep pushing. But time to back off....he physically and mentally can't do it any more.... he is done.... even to hard for him to go and watch.....makes me sad...tomorrow is our last day. The house will be.done.....but hubby will also be done. No more projects....life...sometimes hurt...Nite all...

Our Lewy body dementia and parkinson disease journey #54

  Before I leave for work I wanted to let you all know the funny side of this disease...they warned me that hubby will start to collect things....and to watch what he collects some could harm him....well my hubby ...has now put 16 bottles of shampoo and creme rinse in the bath/shower...3 around the toilet and 4 on the counter by the sink....I ask him why....he says..."he has no idea"...I say where did you find all of these ...he says "no idea"............I have purchased them with coupons and put into the pantry...and yes I know they have expiration dates ...I am on top of this.....and now he has to have every door in the house closed....EVERY DOOR....this drives me crazy...and he has no idea why.......but he closes them and I open them....we are a mess here...........dishes are everywhere in the house as I still try to let him put the clean dishes away.....always a hunt....but we are doing good....enjoying a few good laughs....have a great day everyone and love on

Our Lewy Body Dementia and Parkinson Disease journey #52

  This has been a fun 4 days with our daughter and son in law coming home. We got to get together as a family and enjoy our grandson's birthday. I was a little worried about hubby going and being around everyone and still keeping it together. But he actually did pretty good other than getting mad a few times and being mean. Then the family wanted to go to Fazzari's pizza. I didn't think it would be a good idea for him but we went. Things went ok. Our son in laws father came to town so he wanted to meet for dinner at Fazzari's 2 nights later. Hubby was fine and then...........pride........mercy.........I took hubby's and my water glass and moved them to the side of my plate. This made hubby mad and he began..."why are you taking my water" can't I even have water" really loud....Nate tries to explain to hubby that there was another glass of water in front of him.....more confusion..........more getting mad....more of hubbies madness ..and th

Our Lewy body Dementia and Parkinson disease journey #51

  We have been blessed with having our daughter and her family home for the last few days. Been enjoying the grandsons and just fun being together.....but......hubby....not sure what is going on with him but the meanness and anger is back...We were told to up his meds starting Monday and not sure if that is the problem or....if he is just overwhelmed. He gets so angry that he can't do something or feels no one wants him doing something. Most of the time his anger is me.........I am limiting him....... Our son in law Nathan is so good with him. He has patience and can settle Brent down and he walks him through what he is needing. Been such a help for me. Daughter has been helping me go through things to donate or sell. We took down all the upper cabinet dishes and cleaning the shelves. Running everything through the dishwasher to donate. Taking down all the items on one wall so I can get ready to repaint the kitchen. Lots of work trying to get this house ready to sell. We w

Our Lewy Body Dementia and Parkinson Disease journey #50

Image
  A quiet evening for us....watching the grandsons from Nampa while the parents are out.....and we are enjoying the old time movie "Sandlot"....hubby had a hard day.....not sure why ...might have been to much excitement....anyway he is resting tonight and we are just enjoying the evening....God bless all and have a wonderful Memorial weekend....

Our Lewy Body Dementia and Parkinson disease journey #49

  Just a quick update as I am tired tonight from working and daughter and her family are coming home for the NAIA games. Hubby is doing good on his new meds.....no melt downs, no anger, no meanness..........but he has a lot of confusion....lot of not understanding, starting to choke some while eating, all of which are part of the disease. He is still having nightmares and trying to rescue grandkids......where he is yelling and kicking. But overall considering ....we are good. We both have made it through this week and not real stressed out. I am good. I am ok in my spirit. Just keeping my head up and doing whatever needs done. Thank you for asking, and for caring. We would never make it if it wasn't for all of you and you all backing us with prayers. Have a good safe weekend. Love on your family and bless them. Life is crazy out there and we never know when it is our time. God bless........

Lewy Body Dementia and Parkinson Disease journey #48

I am a grandma of 12....youngest is 5...I love taking care of grandkids no matter the age. But with a 5 year old you can play with, make the smile, get feedback, watch them play etc......now take a 73 year old hubby with lewy body dementia and Parkinson......... He goes for most of the day with nothing to say, no smiles, no opinions, no thoughts.......no ideas........just sets....if I say lets go he gets up and goes but sets in the car..... A horrible disease.....when someone comes he tries real hard to be himself....and when they leave he is back to just setting. Our neurologist says..."Helen, it will get worse"........all I can say is "Lord help me to keep my head above water"......I work hard to not have to think about it....hubby goes with me....but not really there....... No one understands this unless they are going through it.....a strange life that I will never get used to.......and they crazy part is ...IT'S NOT HIS FAULT"...............