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  Our Lewy Body Dementia and Parkinson disease journey....stages We had such a fun time in Nampa at our daughters home....4 youngest grandchildren running and playing....we were so busy....we also had hubbies appointment with the neurologist....wasn't a bad appointment but we were made to know some things that are happening....hubby is retaining water....he has gained 15 pounds in the last 4 months and mostly the last couple weeks....has extremely high blood pressure...the problem is if they give him a blood pressure med with a water pill than the problem of his bladder is worse ...his bladder problem is getting worse daily...good news is daughter and I went shopping for supplies to take care of the issues but didn't purchase them at the appointment our doctor said she could get them covered with our insurance through Norco so we will be receiving supplies soon...problem getting hubby to wear them.....he is shutting down more all the time....not much strength and not much voca...

  Our Lewy Body Dementia and Parkinson disease journey..church Happy Sunday morning everyone....today I thought we might go to church...there is a little church across the road from our park....Faith Bible Church....it is just a walking distance away...but since the wind is blowing and cold we will drive....it's only a few minutes away so if hubby has problems or gets agitated we can be home in minutes.....he doesn't really want to go but I am encouraging him to try....hope everyone is having a great day....we had a prayer answered yesterday...nothing big but it took stress off my shoulders so I could sleep better ....looking forward to the holidays....trying to go through a lot of my tubs of decorations before it gets to cold outside to do it....but getting it done...can't believe I am still taking truck loads of items to the thrift stores....but 3 large bags of winter coats and clothes are in the truck now ready to be delivered....hubbies back hurts him a lot so he is tak...

  Our Lewy Body Dementia and Parkinson disease journey....noises Hubby has not been feeling well...he is extremely tired and kinda red in the face. Doesn't want to do anything, his back hurts, has a good appetite so I took his blood pressure and it is 145/81 not bad for him. But he has picked up a new quirk....he wants to click his tongue and make weird noises....out of the blue he will just make noises. Weird...not bad for a while but then I have to leave the room or go do something or go crazy. We are going to his neurologist in a couple weeks and I have so many questions. For those who have asked his legs are better...now it's just his back that hurts. I can't find anything to help him...he just wants to watch TV and eat. Take care friends and to the couple who have told me about your hubbies this week, hang in there, trust God he is the only one who can show us what to do.....text me if you want to just vent...I totally understand....we can go through this together...

  Our Lewy Body Dementia and Parkinson disease journey...friends So we live in a 55+ park...I was told there are 48 modular homes here....anyway we have become friends with a lot of them...the closest ones are in their 80"s she has beginning stages of dementia and Dale has cancer....but they have the most beautiful flowers...mums as big as pie pans...just beautiful and they are so proud of them....well he brings us tomatoes and cucumbers and I take them homemade bread...a few days ago he comes over and says "Helen I want to make you and Brent supper"...he says "I see you running here and there and I want to have you for dinner".....he says the best way to meet friends is breaking bread together....so last night he had us over for BBQ ribs, baked beans, homemade potato salad and huckleberry cobbler for dessert....we had such a fun relaxing time....they no longer attend church but have a great heart...he can't see very good so can't drive and can't go...

  Our Lewy Body Dementia and Parkinson disease journey...lie I was told today that I am to honest. To get help for hubby I need to learn to lie. This person is legal separated from her hubby but has never left him. They live together but she gets all kinds of government help. She works but also gets a caregiver to come in for 4 hours per day FREE...government pays. She gets her pay check and then helps for him. Mercy....others say you have to learn to play the game...if you do you get help. Well...I am not a good liar.....if I did my conscience would keep me up all night crying...so best just be honest. Yes, we have checked into getting help with hubby...so far it's a NO GO....most can not deal with his disease. So I just pray and tell the Lord..."Lord I could really use some help" and I know he will answer in his time. Also could use a few prayers that our home sells before winter. Don't want to deal with two homes through the winter months. Also...drives...

  Our Lewy Body Dementia and Parkinson disease journey...mean Well...I didn't want to post but to keep this chapter book going I must be honest and post. For several weeks now hubby has been changing...I thought I could handle it but mercy....at first he quit reading his Bible...then I would put the Bible on tape on and it was ok for a while. Then he got into talk shows...which for a while was ok. Then I noticed he was getting into not good talk shows. Now some of you might not agree but we have always held a standard in our home. No r rated movies...no cussing...no drinking alcohol...no smoking etc......always hubby and I agreed on this and we never even let our kids. But now hubby is into watching and listening to some crazy cussing shows...some weird shows.....gets real angry when I say something. So I hid the remotes. Now he can be just setting and just started yelling really angry.."SHUT UP" "DON'T TALK TO ME".....Then he settles down and then ...

  It's 12:48 pm everyone is sound asleep...house is peaceful and quiet...me I am wide awake...exhausted but can't sleep...daughter has worked her heart out for the last 2 days...organizing...downsizing me even more...baking...she even made homemade bread for my neighbor...his wife has dementia and he is always giving me tomatoes and cucumbers so she made them some bread...they were so excited to get it...took 4 kids to the fair...daughters two boys and son Jeremys two children...they had so much fun...family all met at DQ for ice cream for my birthday and to give me gifts...pushed hubby in the wheel chair at the fair so he could go and this evening his legs were swollen again...I have been so blessed with so many family and friends wishing me happy birthday....you are all such a blessing to me....I love and appreciate all of you...I guess I am still adapting to this new life...new home and hubby's issues....everyday I see him changing...my heart breaks for him....and for me...