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Showing posts from November, 2024

Our LBD and Parkinson disease journey

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  We had a great Thanksgiving....was just hubby and I, son and his two kids.... a quiet nice dinner...then our other son and his family of 5 came over and we had desserts and played a card game. was a lot of fun.... new game and just relaxing...Hubby did not play just watched us all. Today hubby has been really tired and has a stiff neck and some pain. So, he was up for a little while and then went off to bed......he has been spending about half the day in bed lately. I have the grandkids today as son is working so we will play, eat and just watch TV. Both grandkids have head colds, so I am doctoring them and just relaxing. Been pretty tired today. ..hubby has been talking more about his diseases. We both know that time is limited but we are just going to keep on keeping on. Trying to count our blessings and enjoy each day we have. God bless and thanks again for following our journey.

Our LBD and Parkinson Disease Journey

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  Things were going where hubby just wanted to stay in bed for four days and nights. Pastor Phil came and prayed for him and he got up took garbage out and the next day he was up took a shower and was alert. This was good for a couple days. Then he has taken back to the bed. Today I went into the bedroom at 10:30 am and said "Brent you have to get up...he says "No I am going to rest". I said "no the doctor says you have to keep moving...so you have to get up and move around and keep your muscles working". It was hard but he got up took a shower and I have to sneak it to get the dirty clothes so he doesn't put them back on instead of the clean ones he takes into the bathroom...so we got him in clean clothes and then the battle of him brushing his teeth...he says "I did early this morning...no I say you were not up....so finally I convinced him he had to brush his teeth.......finally got him into a chair...but not moving.......this is so hard...he j...
  update.....doctor said an internal part on hubby's hearing aid failed...but the aid is still good....so the part is being ordered and is free due to being a recall.........we only have to pay for the service call....so hubby will get his hearing aid back and we won't have to have an extra expense....God is looking out for us.....cha ching..
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  Well, hubbies hearing aid.. is not working...how long has it not been working....who knows....he has no idea.....so do I spend the money for a new one....or just not worry about it....either way...he didn't really use it when he had it in his ear...he always turned it real low...but also has problems understanding what is said when he hears it......decisions.... (doctor will let us know the cost of a new one)
  Our lewy body dementia and parkinson disease journey...tonight hubby went to bed early he said he was tired but wasn't hurting anywhere....I kept checking on him and he seemed to be resting..so since I was driving home tomorrow I decided to go to bed early also....sound asleep hubby on his side with his back to me....begins kicking and let's out a yell...I wake clear up and say brent stop...he flips to his back and a real loud growl mean growl...I say brent you have to stop....he flops a few times and wakes up....he says a bunch of horses were stomping him...I have to admit a fear hit me that I wouldn't be able to control him...but I also knew son in law and daughter were downstairs uf I needed them...please pray for us...please pray I will know what to do...I may not be able to take him any more...my heart breaks...
  Been pretty stressed for a couple weeks now....not just hubby but something and someone we are really praying for....well today I needed to walk to get the jeep ..the studs were on and we needed to pick up the jeep...all the kids were busy so I told hubby just stay here and wait...I will come back...just give me 30 minutes....and so I took off walking...it is about a 2 mile walk....when I walk I talk to God and we work things over...it's beautiful out and I am walking and crying...Lord...please help this situation out....then it comes to me ...this scripture "all things work together for good to them who are called by my name"....after this comes to me I say "Lord but don't' you understand the situation....and this was the scripture you gave me last time.....I need something like..."don't worry...everything will be ok"....or "just praise me the answer is on the way"....but no I get "all things work together for good to them who ...