therustycupboard

  Not sure how much hubby understands at our neurologist appointments. But ever since we have been home he has been having anger issues. One is he likes to watch talk shows. Not bad ones or nasty ones....but ones that are about a senior and his family turns on him and goes after him for his money and he retaliates. Doctor says NO....stop those shows as with his state of mind he may begin to think it is real and all about him. So since being home I have tried and he gets real mad about it....even threw the remote at me and started yelling....daughter is going to figure out how to delete them off our TV. Today I needed to run errands so I ask him to go he says "No I am staying home" so I go but try to hurry back. Finally I talk him into going and he stayed in the car when I ran into Winco. This afternoon daughter calls and says "mom meet me at Hobby Lobby to shop" she is in Nampa and I am here but we facetime and it is fun. So I tell hubby I am leaving for on...

  You know I count on all of you a lot...I figure if I get crazy some of you would kick my butt. I got a call and the person feels that I am in a depression. I thought I had a good day today, hubby helped me clean out the shed take out all Christmas and put in the yard items, mower etc. All the Christmas is on the car port and we are going through it little by little hubby could only help a little as he has arthritis in the back and it hurts him a lot. Yes I do have times where it really gets to me....times when I want to scream...but I go to the Lord in prayer and come on here and ask for prayer....well I guess I need your prayers now. I am so sorry if I made some of you feel that I am in a depression. Not sure how it feels but I had a good day today. I will tell our kids to let me know if they see anything weird in me....they will tell me. But for now I guess I will just go on about working the tubs and let this all go. Thanks for listening...God bless, stay safe, warm and...

  Our Lewy Body Dementia and Parkinson disease journey....october 19th I was given this book by our neurologist. Might be a good one....I am to fill out and work it...

  Our Lewy Body Dementia and Parkinson disease journey....stages..october 18th We had such a fun time in Nampa at our daughters home....4 youngest grandchildren running and playing....we were so busy....we also had hubbies appointment with the neurologist....wasn't a bad appointment but we were made to know some things that are happening....hubby is retaining water....he has gained 15 pounds in the last 4 months and mostly the last couple weeks....has extremely high blood pressure...the problem is if they give him a blood pressure med with a water pill than the problem of his bladder is worse ...his bladder problem is getting worse daily...good news is daughter and I went shopping for supplies to take care of the issues but didn't purchase them at the appointment our doctor said she could get them covered with our insurance through Norco so we will be receiving supplies soon...problem getting hubby to wear them.....he is shutting down more all the time....not much strength and...

  Our Lewy Body Dementia and Parkinson disease journey..church Happy Sunday morning everyone....today I thought we might go to church...there is a little church across the road from our park....Faith Bible Church....it is just a walking distance away...but since the wind is blowing and cold we will drive....it's only a few minutes away so if hubby has problems or gets agitated we can be home in minutes.....he doesn't really want to go but I am encouraging him to try....hope everyone is having a great day....we had a prayer answered yesterday...nothing big but it took stress off my shoulders so I could sleep better ....looking forward to the holidays....trying to go through a lot of my tubs of decorations before it gets to cold outside to do it....but getting it done...can't believe I am still taking truck loads of items to the thrift stores....but 3 large bags of winter coats and clothes are in the truck now ready to be delivered....hubbies back hurts him a lot so he is tak...

  Our Lewy Body Dementia and Parkinson disease journey....noises Hubby has not been feeling well...he is extremely tired and kinda red in the face. Doesn't want to do anything, his back hurts, has a good appetite so I took his blood pressure and it is 145/81 not bad for him. But he has picked up a new quirk....he wants to click his tongue and make weird noises....out of the blue he will just make noises. Weird...not bad for a while but then I have to leave the room or go do something or go crazy. We are going to his neurologist in a couple weeks and I have so many questions. For those who have asked his legs are better...now it's just his back that hurts. I can't find anything to help him...he just wants to watch TV and eat. Take care friends and to the couple who have told me about your hubbies this week, hang in there, trust God he is the only one who can show us what to do.....text me if you want to just vent...I totally understand....we can go through this together...

  Our Lewy Body Dementia and Parkinson disease journey...friends So we live in a 55+ park...I was told there are 48 modular homes here....anyway we have become friends with a lot of them...the closest ones are in their 80"s she has beginning stages of dementia and Dale has cancer....but they have the most beautiful flowers...mums as big as pie pans...just beautiful and they are so proud of them....well he brings us tomatoes and cucumbers and I take them homemade bread...a few days ago he comes over and says "Helen I want to make you and Brent supper"...he says "I see you running here and there and I want to have you for dinner".....he says the best way to meet friends is breaking bread together....so last night he had us over for BBQ ribs, baked beans, homemade potato salad and huckleberry cobbler for dessert....we had such a fun relaxing time....they no longer attend church but have a great heart...he can't see very good so can't drive and can't go...