therustycupboard

  Our LBD and Parkinson disease journey Today I had fun out running around getting some items that I needed for ...an outing with grandkids....I almost forgot to do it and that is get pics of Santa with the grandkids...so I was running around getting clothes for them...I feel I was so blessed with my purchases and prices...felt bad that I was out and hubby was just setting at home. He doesn't even want the TV on he just sets and does nothing. I try to hurry back as fast as I can, and he is always just waiting for me. But my conscience always hurts leaving him.... then I was so excited to show him my buys and he isn't at all interested. But I set and explain each piece as if he wants to know everything. I sure do miss hm and he is setting right there. It totally makes my heart hurt. Yes, I am counting my blessings that he is here for Christmas.....but he isn't here....no one understands these diseases but someone who is facing them. All I can do is trust and pray the...

  Our LBD and Parkinson Disease Journey We have 4 children and 12 grandchildren....we also had a day care for foster children and we had 9 of them pass through our home....we were the tumbleweed day care. So I could pretty much guess what was wrong with a child. At least have something to go on. But with this Lewy Body Dementia Disease things change daily and it's such a guessing game. Hubby has had back problems for about 2 months now. We have the neurologist involved and she has offered her suggestions, and we have tried them all. She says it is not the meds but could be the stage he is in. Last night he was setting in his chair. A chair our son got for him ...this chair can do anything. Can even throw him out of it but also does everything else. Now with Lewy Body Dementia the short-term memory is what goes and changes. This man can tell you where to get gas and where to eat anywhere across the states. But has no idea what happened 10 minutes ago. Well last night I wa...

  I have found the hard way that there are two kinds of shopping trips. One is major business-like.... certain groceries, certain errands etc. that I must do alone. Because......I have found I have my list and I am focused in on what I am doing and then hubby.....no matter who is around or where we are decided to yell or talk real loud and say..."we have to go home right now"...well, what ever you do ..DO NOT ASK WHY.....because he then proceeds to yell or talk back real loud.... because I have to go P Mercy.....and he doesn't think there is anything wrong. People stop and stare and you want to crawl under the table.... it's a lot different having a 5-year-old say it than a 73-year-old...or he gets in the isle and stands there and won't move and people are trying to get around him and he gets angry with the people. So what you do is make certain shopping trips all about him. Then you are prepared to act fast and be ready for anything. Lists are for when sh...