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Our Lewy Body Dementia and Parkinson disease journey....bowels

Well, we all know the stages and we all know what to expect. But mercy we as caregivers are human also. And, I am no saint. Even when I know what to expect sometimes it makes me upset. I was praying please Lord help us skip some of the things that will happen. But the Lord has other plans. I know hubby tries to do his best and things happen that he can not control. Now, the bad dreams, acting out, getting angry is under control with a few meds. He doesn't take many only 3 and one is for blood pressure. Our neurologist say some have to take handfuls of meds each day. But we are no pills if possible and it seems to be working. But in the later stage the person will not be able to handle their bowels. I know awful subject but it is a actual fact. It happens. Made me angry but it got dealt with. Middle of the night hubby wakes me up. I just pray Lord have mercy on me. But we are willing to except our chapter if this is the road you want us to take. Now don't think le...

Our Lewy Body Dementia and Parkinson disease journey....sick

 I am feeling pretty low.  I got hubby to walk a mile this morning and now all afternoon he has been in bed.  I hurts all over.  I feel terrible. He is sleeping so will let him sleep but I feel so guilty.

Our Lewy Body Dementia and Parkinson disease journey'.....walking

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  Hurray!!!!! I got hubby up and ready to go by 7:30 am. We started off on our walk. Hubby with rollator and pushing it. He starts out real good. But starts slowing down. My phone goes off and says half mile completed and he says "lets go home". So we turn and start back hubby is sliding his feet now but still walking, then he begins to fall. He hangs onto the rollator and I grab his arm and we get him back and settled. Now according to our doctors it is not considered a fall unless he hits the ground. We will take this as a stumble. But he is dragging his feet. I say "do you want me to push you the rest of the way" He says "no". So I say "well, then pick up your feet before you stumble again". Now he is walking like a tin soldier. Marching it off which lasted a few steps. He is walking slower and dragging his feet.... But all in all he made it back home. He walked 1.12 miles 2753 steps and took 25 minutes....not bad for someone who wants to just...

Our Lewy Body Dementia and Parkinson disease journey...confused

  Today hubby stayed with son and grandkids as it was sons day off. So he went with the kids to swimming lessons and then son brought him back home. I was gone 3.5 hours painting a contracted house. When I got home hubby has been real confused. Walking from room to room looking for that thing. What thing, I ask? He has no idea. But he looks and gets upset because he can't find it. So I go get the remote and tell him it needs new batteries....it didn't but maybe that is what is bothering him. Guess it worked. Mercy ..always a guessing game. but the good news the remote has new batteries. Tomorrow I will be taking him...he gets to confused for me to leave him.

change of mind

  Well as women we have the right to change our minds....and I did...didn't work having Maizy belle in the back yard...hubby couldn't get in or out of it...grandkids loved playing in it but I decided to sell it. No one can see it in the backyard so hubby and I decide to move it back to the driveway so I can put for sale signs on it. Sons were busy and daughter isn't coming for a couple weeks so I get out the dolly which is a dolly to move boats around with...it works great on my camper...so we get it hooked up...I am steering and hubby is pushing with his behind and little by little we move it to the driveway....now hubby's back hurts and my shoulders hurt and a head ache but it is where I needed it....now for ibuprofen...

Our Lewy Body Dementia and Parkinson disease journey...watering yard

  I think I have found a small job that hubby likes and keeps him busy. We have underground sprinklers but some areas my flowers are not getting enough water. So I have hubby resting out back on the patio doing word search and I tell him every 10 minutes change the water from the sprinkler to a different flower. Seems to be working...flowers getting watered and hubby seems happy...a win win for me.

Our Lewy Body Dementia and Parkinson disease journey

  Well I went for my walk...came home got hubby up and wanted to go get groceries from WinCo before time for grandkids swimming lessons. We get to WinCo all happy and having a nice time...filled the cart and got up to pay. I put all the groceries on the ramp and a lady in front of me asked me a question. So I stopped and talked to her...when I turned around hubby and the empty cart are gone. But it's our turn for the cashier. I see through the people hubby leaving the store...all smiling with a empty cart. I turn to the lady behind me and I said "My hubby has dementia he is leaving the store I have to go"...she puffs out ..... "welllllllll" like she was really irritated....I tell the cashier I have to run get him...cashier says" that's fine, go"....the lady behind me is so irritated and complains to the cashier...as I go running between people to get Brent. When I get to him outside...he is real confused....but he can't run due to Parkinso...