therustycupboard

  Just a note...hubby just gave me a heart attack....he is out on the patio watching the grandkids. I step in to vacuum the floor in the living room while they are outside. Grandson Gabe is with them, and he is almost 9 so I thought ok...the windows and door is open so I can keep track. I finish... start wrapping the vac up and look outside.....mercy......I take off running ..hubby is on the 12-foot ladder trying to climb on the roof of the porch. Gabe had thrown his rubber action figure up on the roof...this crazy guy decides he will get it. Now this is a man who shakes from Parkinson...can't walk straight and tall, and can't keep his balance is now on a 12 foot ladder trying to get his foot up to get on the roof. I grab the ladder and start telling him to climb down...while I am trying to hold the ladder. He makes it down and is so upset at me. Yes, he can do this....I just won't let him....good grief....

  Well........been a crazy hard week. Hubby is on new meds. They are supposed to help but....so far???.........Hubby has been angry about everything...everything. I picked up Taco Bell for son to drop off at his job for lunch.... went to burger king to get kids meals for the grandkids...got hubby a whopper and then the two chicken sandwiches. Hubby got mad....He only had one sandwich...So I gave him the 2 chicken sandwiches, and he was fine. Just stupid things make him angry. Not violent. He just gets mad and mouthy. Real cranky. I was going to run to the gas station with youngest son...hubby got mad and wanted to come...then after we went and came home, he was mad because all we did was get gas. Mercy...nothing going right for him. Not sure what the next step is. I do know it takes time for these meds to really get into the system...but goodness...He is sleeping good at night though so that is good. I told him I am going to work tomorrow and the next day and he said you ar...

  Been thinking a lot about resting. Not just going to bed. Not just sleeping. But resting. A time where you make yourself rest. You purposely choose items, places and times that work for you to just shut down. No guilt of unfinished projects or chores. Just a time for you. This is really hard for me. I have been raised to serve. It's not about me; I am to take care of everyone else. So hard to just let go and do nothing. The Bible emphasizes the importance of rest and how it can honor God. Resting in God's love is a theme found throughout the Scriptures, offering believers peace, assurance, and spiritual renewal....He gives rest to those he loves, not just rest for our bodies. But rest for our mind, spirit and soul. He cares when we are pushed too hard. So, I am trying...trying to find my place. Trying to find a guilt free place.... trying to just let this body rest and find a perfect peace. God bless...enjoy the day.

  Well, this picture saying says it all. Things change so fast with Lewy Body. I know a lot of you have no idea the difference in dementias....but Lewy body is a fast changing one. The last couple days I have not been able to do anything right. Hubby gets angry and in my face. Just me no one else. I can see it happening...he gets red in the face then purple...I know he is mad. Then he lets go with loud angry aggressive words right in my face. He explodes and then he is fine. Mostly over real stupid things like. I can't vacuum, walk or run. I say "what"...yes you can...then he is mad. Or...son comes in and says "hey mom.... such and such"...Hubby is mad. So, I had daughter contact the neurologist this morning and we are waiting for what she thinks is our next step. It will be a med change...as that is all they can do at this point. He isn't sleeping during the day any more....gets up at about 8 and is awake until about 9. Night aren't as crazy ...

  Happy Mother's Day to all you mothers....what a wonderful day to just stop and count our blessings...blessings of family, home and friends. A day to count our blessings...and name them one by one and it will surprise you what the Lord hath done. Hubby and I are staying home ...grandson Trevin came yesterday and did our yard work and we have been enjoying our backyard. Today we were to be out camping but it did not work out so instead of being sad we will just enjoy being home. We love Mexican so I am ordering take out from El Sombrero for dinner. We went shopping a couple days ago and hubby got me a few pieces of watermelon dishes. A large pitcher and salt and pepper shakers. Of course, I liked them and suggested it, so all is fine. Please enjoy your families...take time to really enjoy them...life is short.... things happen....I know several families who are grieving this day...my heart breaks for them. Our son in law lost his mother on Mother's Day a couple years ago....

  Not much to report....just the usual. Night acting out dreams. Day very confused. Very confused. His feelings get hurt real easy over silly things. He gets angry and cries. I went outside and told him to set on the patio while I went into the shed to get something to sell. I came out he was gone. He had got into a panic and started around the house looking for me...I couldn't find him so I go around the house looking for him...so around and around we go not seeing each other. Finally, I see him through the living room window on the opposite side of the house. He was in a major panic that I was gone. I am becoming more and more his nurse. Waiting on him and supplying him everything. He never gets hungry but will eat if I put it before him. So, I have to remind myself to fix him lunch. I don't eat lunch so it's easy to forget. No conversations. He hates his earring aid that I got to work again. Just life..grandkids all help out so much. Even the 5-year-old helps....

  Here is a problem I am having issues with. Hubby hates his hearing aid and hearing loss is part of Lewy body dementia. So, my problem.....hubby refuses to wear his hearing aid. If he does, he turns it as low as possible. He HATES it. But he really does need it, or at least his doctor and I think so. Well, his hearing aid quit again. I will take it to see if they can repair it again. But I think they will push me for a new hearing test and a new device. My problem now is... .do I keep forcing him to try to wear it .get it fixed... possibly buy a new one... or just let him be and be comfortable without it. I want to do what is best. Doctor says at the stage we are in it's up to us....decisions.