therustycupboard

  With Lewy Body a person can have a few of these symptoms at any stage...so hard to pin point a actual stage...our neurologist doesn't go by this chart...she uses the 3 steps mild, moderate and severe...stages...but this is a guideline to see what really goes on...also most people with Lewy body do not make it to the 7th stage is what we are told....a person doesn't die from Lewy body dementia...they die because the body shuts down and the brain doesn't recognize they need to chew, swallow, choke etc... like weakened immune systems, swallowing difficulties , and impaired ability to clear secretions from the lungs. We are told it is mostly pneumonia but not the virus kind the aspiration pneumonia...but our neurologist also tells us steps to help the person if we see any of these things begin to happen...so always on guard watching to see what to step in to do...but remember we are always in the hands of God...he alone knows our day or hour....so we trust. Like Comment Shar...

  Something no one ever talks about and that is the bed. Hubby has his own room for quite a while now. And I can not sleep. Been together for 51 years....even had our kids when young and some grandkids share our bed. Which most of you did. But now I have this big old queen size bed and I can not get comfortable no matter what I do. I know some of you have lost your loved one and they are enjoying Heaven. My hubby is in the next room .Every night I toss and turn...can not find a good spot...I add pillows I throw pillows...I sleep with my head at the top of the bed...I sleep at the foot of the bed I have even tried to sleep cross wise across the bed. Most of the time I just prop myself up and sleep setting up. Not sure why the bed is no longer comfortable...I should be happy with all the room. And it's not like I miss hubby....it's just I can not find a good spot on the bed. So most nights no sleep. Now this morning at 3"20 hubby was again having some scary dream...