Our Lewy Body Dementia and Parkinson disease journey...emotionally exhausted

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Been a hard week. But I have been able to get out and walk everyday with someone staying home with hubby. It has been fun but I feel like I am letting hubby down when I go out without him so I hurry as fast as I can to get back. He doesn't even seem to notice but I do. Hubby has been real tired. Exhausted. Doesn't want to go anywhere and if I make him go he stays in the car. He has been going through more changes. Always throwing me a curve ball. Some that just floors me...it's so not like him. He wants to go to bed all the time and sleep. I find it getting harder for me to keep up with the unknown. I know in the future we will be making some new adjustments for him...what???? I am not sure. But I am almost emotionally exhausted. Not with life but with these diseases. Please pray for me to do what is right. What to do...don't know. Most of the ways you turn to when working with these diseases...the community doesn't have to many options. Only if you have the means to hire in the right people at the right time does it work. Most of us don't have those means...and if you look another way ...the government will take everything you have. So you just wait, think and trust. I know the Lord gives me strength, wisdom and courage. But most of you think I am a strong woman...I must confess I am not....I am just winging this....not knowing what I am doing. Just trying to keep hubby under control, clean, fed, safe and warm. His stories are getting more and more jumbled up...his nerves are all jumpy...he doesn't understand most things...just a horrible disease. But tonight he is sleeping and the house is quiet so I will count my blessings and go read a good book. Nite all.

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