therustycupboard

  Here is a problem I am having issues with. Hubby hates his hearing aid and hearing loss is part of Lewy body dementia. So, my problem.....hubby refuses to wear his hearing aid. If he does, he turns it as low as possible. He HATES it. But he really does need it, or at least his doctor and I think so. Well, his hearing aid quit again. I will take it to see if they can repair it again. But I think they will push me for a new hearing test and a new device. My problem now is... .do I keep forcing him to try to wear it .get it fixed... possibly buy a new one... or just let him be and be comfortable without it. I want to do what is best. Doctor says at the stage we are in it's up to us....decisions.

  Been a busy weekend for hubby. Daughter and her family came home to help enjoy Grandpa's birthday and the Asotin Fair and Parade. We took hubby's wheelchair, and it worked out great for hubby. He got tired so son in law Nate pushed him around. We also got to see some good friends while in Asotin...Jess and Carol Hahn....was so good to visit with them. Then that evening son Jon and his family came for a bac kyard firepit BBQ and games. Such good family time...even grandson Brayden and Sarah made it home from Cancun to enjoy some time with us. We are blessed with the best family. Today hubby has spent most of the day on the front patio. He will set for hours and just watch the cars go by. Daughter and family left this morning for home. Quiet relaxing day. Hubby has had some crazy nights, and busy days so kind of nice just to relax. Otherwise, all is well, and we are just trying to make all the memories we can. I tell people we don't know how long we have together .....

Now what I am going to say is for our valley and for us. Do your own homework for your area and spouse. I have done my homework...visited several places and in this valley...no one wants to deal with Lewy Body Dementia. It's like a plague. When you ask they say "nope"...we can't handle that here. It's not their fault...this disease takes special people and 24/7 care....I get it. I have ones from the valley who specialize in this disease call me and talk ...ones from Boise call and talk with me. And, it comes down to "stay in place"....so for now we are being told the best for hubby is to "stay in place" and have ones come to us. It's cheaper and he is safe here. But ones can come into the home to help. This I will be checking more into to see where that goes. Thank you to the ones who have recommended homes outside of the valley but kids and grandkids want grandpa close. So that is what we will do. Actually, we are fine...I get o...

  Doing research on special places for hubby...for down the road....most places do not want to deal with Lewy Body Dementia....interesting...so I decide to go check out a couple places and just research them....went to one place...they were very sweet and understanding...gave me some good info...I walked out and cried all the way home....called my daughter and said "I can't do this"...I am just an evil person for even thinking of this....daughter says mom our neurologist says to start now checking for a place....neurologist gave me 6 months to a year.... a year ago to have him placed....but so emotional....I just need to go have a good cry....

  Got hubby up to go for a walk.. Taking wheel chair in case I have to push him home

  Been a hard week. But I have been able to get out and walk everyday with someone staying home with hubby. It has been fun but I feel like I am letting hubby down when I go out without him so I hurry as fast as I can to get back. He doesn't even seem to notice but I do. Hubby has been real tired. Exhausted. Doesn't want to go anywhere and if I make him go he stays in the car. He has been going through more changes. Always throwing me a curve ball. Some that just floors me...it's so not like him. He wants to go to bed all the time and sleep. I find it getting harder for me to keep up with the unknown. I know in the future we will be making some new adjustments for him...what???? I am not sure. But I am almost emotionally exhausted. Not with life but with these diseases. Please pray for me to do what is right. What to do...don't know. Most of the ways you turn to when working with these diseases...the community doesn't have to many options. Only if you hav...

  What do you do when God’s plan doesn’t look like what you expected? Palm Sunday... marks the day Jesus entered Jerusalem—riding on a donkey, greeted by crowds waving palm branches, shouting, “Hosanna! Blessed is He who comes in the name of the Lord!” (John 12:13)....... It was a moment of celebration, a glimpse of victory… but just days later, those same voices turned to shouts of “Crucify Him.” Maybe today,.... you're in a place where things don’t look like you thought they would.... Maybe you were believing for a breakthrough,.... a restored relationship,.... a healing—only to be met with silence,.... disappointment,.... or unexpected detours. But here’s what Palm Sunday reminds us: God’s plan is always bigger than our perspective...... The people wanted Jesus to overthrow Rome, but Jesus came to overthrow sin and death..... They wanted temporary relief, but Jesus came to bring eternal redemption. Even when life feels uncertain, even when it looks like hope is slipping away, G...

  Actually, we have been doing good. Hubby has been really mellow. Not wanting to go anywhere but is back to reading a little and doing some word searches. He loves to watch the grandkids play and they also go get him to make sure he watches. I see him changing daily. And, not for the good. So hard to watch as your hubby slowly .....Hard for me to even say it. But I am blessed he is still here for now. And, I have learned a lot about these diseases...in fact sometimes I think I know to much as I see him change, I know why and maybe it would be easier just to check it off as old age and not know what is really happening. The last couple days he has been trying to help...he gets really tired really easy...always saying "I am so exhausted"....and then goes to bed. But we have been trying to clear out anything that could cause a fall. All small stands and dressers are leaving, baskets on floor etc. Lots of things are going to our son Jeremy's house as he is in real need ...

 For Christmas we decided to have grandpa give each grandchild that was home a memory hug...since he has dementia and parkinson we don't know how long his memory will be with us.  So each grandchild was given a sweatshirt and we painted Brents hands and arms and he gave each child a hug, which put his hand print on the back of each shirt.     

  Been having to rethink some of my ideas and change a few things I wanted to do in the future....ONE .... yes, it is a good idea for one level ........but not for hubby finding his way around in a new environment...especially with him already getting lost a few times when at another place....so maybe have to rethink how he moves around in our current home....instead of moving him....TWO....sons and son in law (Jon, Jeremy and Nathan)....are telling me to slow down....so thankful for each of them...they keep me calm and in my place.....all of them are there for me and I love them all so much...even grandson set and told me yesterday....grandma slow down and think this through....we can make this work...thank you Brayden...hubby fell the other day trying to get up two steps to the kitchen and cut his arm....but I think I could use child gates and block that way of him going....also removing all tools and extra gas etc out of all backyard sheds....going to child proof all of them for...

  Hubby 5 years ago ...strong and healthy...today I asked him how old he was, and he is so proud looks at me and says "I am 78 and will be soon 79: .......nope...he is 73 and will soon be 74 on the 19th of this month....but at least he is happy today no matter what his age is ...counting our blessings...  

  I know this sounds morbid, but I have been doing a lot of research on the Biblical views of cremation vs traditional burial....I have watched tons of videos, listened to lots of ministers.... walked through Biblical studies and I can see good points on both sides....in today's world you are pushed to do cremation as its cheaper, faster, better for environment due to not having to have so many Cemetaries....hubby and I have talked a lot about it...and we both come down to traditional burial for us....we are not against what you choose or how you go about it...but for us....we are just two ole fogies who love the traditional way to do it...simple easy no dramas, dinners, festivities...just family....just getting our priorities in place....

  It's so hard. I know that by now I should be able to handle the emotions of this disease. But it's so hard. We were sound asleep, and I hear these yelling crazy words...then he begins crying saying "please stop". I lay and ask the Lord please help him. It gets quiet and I think it's over then he gets up and walks through the house. I lay and pray, and he goes back to bed. He is asleep now and I am stressed. I am a girl who believes in prayer. But still hubby suffers. I know God can heal but still hubby suffers. I walk the floor asking the Lord already to help us...I know some of you have gone through worse and I am trying not to complain. It's just that it's so hard to watch your hubby change...daily. And you have to just sit and watch. Yes, he lost his temper today. He just yelled at me was all. And yes he was sorry after. I am a hard person to live with I know. But after 51 years you would think we got this. All is quiet here now so I guess I...

  Cleaning out a couple sheds and found Brents three wheel bike....When Brent's dad was in his late 80's early 90's he had a three wheel bicycle that he would ride from Weippe to Pierce and back which is 11 miles up hill...he would go to the pharmacy there and get his meds....he wouldn't let anyone take him he would say "I have all day to do this" and off he would go...many of you remember seeing him and he even made the newspapers.....our son Jon came up with a three wheel bike for his dad for Father's day. in 2018.....he saw a vintage one online and bought it.... hubby was so excited ...reminded him of his dad......yes, I tried it but I forgot the hand brakes and ran into the neighbor's fence......we just love this, and it was so thoughtful of Jon and Sue to get this for their dad...it has brought some good memories back for Brent....no hubby didn't ride it...was hard just getting him on it....