therustycupboard

  Well I went for my walk...came home got hubby up and wanted to go get groceries from WinCo before time for grandkids swimming lessons. We get to WinCo all happy and having a nice time...filled the cart and got up to pay. I put all the groceries on the ramp and a lady in front of me asked me a question. So I stopped and talked to her...when I turned around hubby and the empty cart are gone. But it's our turn for the cashier. I see through the people hubby leaving the store...all smiling with a empty cart. I turn to the lady behind me and I said "My hubby has dementia he is leaving the store I have to go"...she puffs out ..... "welllllllll" like she was really irritated....I tell the cashier I have to run get him...cashier says" that's fine, go"....the lady behind me is so irritated and complains to the cashier...as I go running between people to get Brent. When I get to him outside...he is real confused....but he can't run due to Parkinso...

  Update on hubby...tired...all day and night...pretty quiet just sets and sighs...no pain...just tired. Received the following from a friend.. As care partners and caregivers, we each face our own unique storms. It’s fascinating how one moment everything can feel calm and then suddenly, chaos erupts. It makes me wonder if those quiet days are just the calm before the storm, especially with O’l Lewy lurking in the background, ready to make its presence known. We don’t have lifeguards or life jackets, and there’s no safety net waiting for us. We’re navigating uncharted waters, doing our best to stay afloat while caring for our loved ones. It can feel overwhelming; we often worry about our own safety while trying to ensure that they are okay too. This storm may pass quickly or linger for days, and it’s exhausting. We’ve poured all our energy into supporting our loved ones, and sometimes we forget that we need care too. In the midst of all this chaos, we have to find ways to be the c...

  Hubbies father's day gifts from son Jon and Jon's fathers day shirt from Sue

  Emotional Divorce....I was asked if I feel like I am in an emotional divorce. Well for one I hate the word divorce. But I had to stop and think about this. Yes, things are really different now. Hubby is like a roommate who doesn't talk except to grand kids where he grunts mostly or to visitors. Son took him out yesterday and said dad was pretty good and talked to him. But to me...mostly just sets no conversation....or he can't hear or comprehend the words I say. But then there are days that it is better. Mostly he does just set and I do other things and entertain myself. Never even thought of it as a divorce. Yes...I get upset sometimes but I am fortunate to have grown kids I turn to. They help...understand and care about both of us. But as far as an emotional divorce or any other word about it....not in this home. We are together until death do us part....I am not trying to be a saint or anything ...we just took our vows seriously and our kids love us both an...

 

  Been a while for hubby to have a bad night. Not sure if it's because of being so busy the last few days. I know he hasn't been feeling well but nothing big. But last night I was asleep and he was in his room and began yelling...more just yelling than screaming...I was told by the neurologist to let him be so I did. As long as he doesn't hurt himself. He yelled and yelled and then settled down and then again...this went on three times. Then he got up and started walking the house. I stayed in bed and just listened. He then went back to bed. Now I am wide awake...I try and try to figure out what triggers these episodes....was it something he watched on TV so acting it out, was it because he didn't feel good, was it because we were so busy the last few days. Not sure. I was planning on leaving him for 2-3 hours tonight while I take the grand kids to the circus. But now I think I might need to have someone come set with him. Will see if grandson c...

  Most of us learned to draw a clock in about the second grade...but today our doctor said Medicare needs us to draw a clock...we were both given a time ...I was given 10:45 and brent was given 11:15. I drew mine and gave it to them and they took it...hubby spent about 5-8 minutes working on his and finally finished I got to take a pic of his while we waited for them to come back. I guess drawing a clock tells them a lot about a persons mind. Doctor appointment went good. blood work, tests, and exam for our yearly Medicare physical but with added extra tests...will know in a few days...but glad it's all over and now done for a few months. here is hubby's clock

 

  Several have asked what else needed to be done for our financial with an attorney. We have already done everything but take hubbies name off everything. This will be done soon as he could be facing... palliative care,...or hospice care. Which could come at any time.....but to do this we need to get things where they can't be touched. It's a process that an attorney must handle. And if at any time Medicaid needs to come on board we are ready and have all our ducks in a row. I know most of you are already set in this but this is something we let slide and now trying to get it all done. Right now hubby is holding his own and we don't need the extra care but down the road...yes it will be necessary. Our neurologist says out of all her patients only one tried to keep the loved one home and it turned out not good. So the Lord knows when, where and how this will all work out. We have always had insurance and etc through hubby's jobs but now we do what has to be don...

  If you see my camper listed on marketplace ..yes we are selling it...hubby can't get in and out now with his Parkinson...he falls ..so to keep him safe and to let someone else enjoy my camper I am selling it...I thought it would be harder to let go ..but I am ok with it...time to move on...

  Our journey home was pretty pleasant. Just beautiful out but hot. We stopped 4-5 times to let hubby get something cold to drink and move around for his legs. He didn't say much of anything until we got outside of Winchester. Hubby are you taking us home. I said "yes". He says, "well it should be almost dark when we get there". This was at 2 this afternoon. I said, "no we are just a few miles from home." He says "we have to go up the river yet" ...I said "no we are going up Webb road to Tammany then to the house"..He sets up in his seat and says "no, I want to go home to Weippe"...I said 'what we live in Lewiston we left Weippe in 1984"...He says "take me home"....finally I say "ok, I will take you home to Weippe in a couple weeks but right now I am tired and we are going up Webb road to tammany to a house to shower and rest...He says "ok, then take me home to Weippe"...ok hubby wi...

Been a crazy weekend...we left Lewiston at 6:30 pm and made it to Nampa at 1 in the morning. Went to see the neurologist on Friday and she was very helpful. Hubby has gained weight and is doing pretty good. She wants me to get everything out of his name and prepare for the future. So kids and I will finish all the legal stuff and get things all set up for future. But no one knows really what the future holds....the old song goes "I don't know about tomorrow I just live from day to day" such a good song. All the way down I listened to Joel Osteen on book on tape reading about his book "Break Out"...I got so much from listening to him. So actually, I am good this time...nothing hit me hard. So the rest of the time down here we have just been having fun, ran to daughter's neighborhood yard sales...was so fun. Shopping, out to dinner, playing with grandkids, changing daughters' shades and drapes and just a nice time. I was super tired the first day but ...

  Been a crazy weekend...we left Lewiston at 6:30 pm and made it to Nampa at 1 in the morning. Went to see the neurologist on Friday and she was very helpful. Hubby has gained weight and is doing pretty good. She wants me to get everything out of his name and prepare for the future. So kids and I will finish all the legal stuff and get things all set up for future. But no one knows really what the future holds....the old song goes "I don't know about tomorrow I just live from day to day" such a good song. All the way down I listened to Joel Osteen on book on tape reading about his book "Break Out"...I got so much from listening to him. So actually I am good this time...nothing hit me hard. So the rest of the time down here we have just been having fun, ran to daughter's neighborhood yard sales...was so fun. Shopping, out to dinner, playing with grandkids, changing daughters shades and drapes and just a nice time. I was super tired the first day but thi...

  Do you remember reading and learning about the leprosy camps and islands etc...well in today's world it is Lewy Body Dementia....as soon as you tell assisted living, homes etc....oh, our loved one has Lewy Body Dementia...they make a face at you and say "oh that is a tough one"...we cannot help ....our facility is not set up for that. And you walk away thanking you are diseased....even picking up your prescriptions they ask do you understand this medicine....I say "yes my hubby has Lewy Body Dementia"....oh my goodness..."I am so sorry" that is a hard one. I know I am not the only person out there with a loved one with these diseases....but they treat you like...oh, my ..well good luck....Anyway we are good here today...picked up the meds and getting the dodge packed and ready for a few days away....heading to Meridian for the neurologist appointment ...daughter and her family are always there to help with the new appointment and the changes we need...

  I don't know if any of you facing these diseases have these problems, but I need to talk with the neurologist for some answers...mercy. Hubby has this crazy idea that he needs to search the house for things. I purchase a new vacuum because the belt broke on the old one. I got the same one but decided to keep one for downstairs and one for upstairs. So I put the old one way back in the furnace room until I can fix it and the new one up front easy to get to. Hubby is determined to climb back there and always get the old one. He moves the new one to get to the old one. I hide some shampoo that I wanted to give to daughter as it doesn't work good for hubby and I. He finds it somehow and starts using it. I hide some spray paint its the kind that will change a object into a mirror...he found it and sprayed it on lumber in the yard. Mercy...drives me crazy. Just saying....I told him we are going to Nampa on Thursday...to see the doctor. He got really mad that night at me b...