therustycupboard

  At this stage in these diseases our neurologist says Helen get help...check into places for hubby as the disease progresses. Months ago she said start now!!!!....so I did. We researched went to everyone we could find local, as I wanted to keep hubby close. Now right now we are fine...I got this but as his body goes down it may get to where I cannot do this. So we found a place and was on the list and excited and to find out. They sold the place and now new owners....and now new rules.....and now the government makes changes that take place in January 2026. We are not looking for right away but for the future. Most of them for memory care want a spin down of $7000- $9000 per month for up to 2 years. Which means you pay out of your pocket for 2 years and then maybe...maybe a program will step into help. But more than likely not. Which will put a lot of families in harms way. Me I am working hard and making changes to accommodate hubby changing. With kids helping so far ...

  The last few weeks all I could feel was I was DONE...done with moving, done with two homes, done with messes everywhere, done with hubby's diseases, done with running to doctors....and then daughter steps in and virtually slaps me and says..."stop...get it together and get things done"...just what I needed...I went back to work...house on 10th got done and ready for pics....yard work got done....hubby ran to doctor got knees drained done....starting to concentrate on new home and instead of climbing over things I was beginning to make things work. Sold the big old stove and that made more room...took the money went to Home Depot and purchased more kitchen cupboards and got them in.....Finally some homes for things. I am beginning to feel like there is a light at the end of the tunnel. I was asked how I liked my new home and all I could do was say "I am so overwhelmed"....I am just moving and doing the things I need to do but my heart is not here. Yes, some...

  Back from doctor...when hubby fell a few days ago and nose planted on the patio....he must have hurt his knee. The doctor said it was hot, swollen and he took 3.5 tubes of reddish colored fluid from the knee. It's just something we will have to watch for and be ready to have it drained. Surgery is not an option for hubby at this time....

  Our Lewy Body Dementia and Parkinson disease journey...walking Hubby can't walk. He rode to wallawa lake which is about 2 hours one way. We stopped once to let him walk around. He rode in the wheel chair while there and then back home that evening. He hasn't been able to walk since. Going to see a doctor about getting his knee drained again. It is swollen really big. Need to get a lot done today but hubby comes first so just getting things done one step at a time.

  We were so excited to take a day away from everything and just go have some fun. We traveled 2 hours up and down some crazy hills but made it to the lake in Oregon. We met our daughter and her family there and had a great time at her camping spot. Her family had got a new camper and had camp all set up. Hubby just set and enjoyed everything and when we walked up to the go carts and golfing son Jon pushed him in the wheel chair so hubby didn't have to walk. We rode back to the campsite later and SIL Nathan cooked everyone hamburgers and brats. Just a great time and then we left to drive home. That's when hubby started going downhill. I had to drive slow the hills are just crazy ones, it was a total dark out night and deer were everywhere in the road. Steep cliffs on the side of the road all the way so I drove real slow. We got home and hubby went straight to bed. Half hour later he got up and could not walk to the bathroom legs were swollen. I got him there and he s...

  Today I have had a hard time...the manual work is mostly over at the old house...but reality is sinking in...my old life is over...our projects of building fences, patios, laying bricks, building firepits, laying floors, removing walls etc is over....my life of small crazy projects is over...I am a sentimental old fashioned girl and now having a hard time letting go...yes I have a more modern home, a yard that is all landscaped, a carport and deck that is of the finest materials...but it is all different. Hubby wants to just go home....I say this is home. We are old....change is hard. Not saying we won't get used to it...just saying so different. No place for most of my projects so took them to the thrift store. Now I will have to find the new me....and where do I fit into this change. New friends are being made here...but am I supposed to change to a new role? So many changes hubby not knowing that this is life now...hubby not there to understand my feelings or to talk to. ...