therustycupboard

  We have been blessed with the best kids. Always there for us. Sometimes almost to much. I lean on them for so many things and lately so many decisions. I was told by a family member.. not my kids.. that I lean to hard on them, they have their own families to take care of also. Kinda was a slap in the face thing. Because I know it is true. Today the selling of our home fell through...so have to start all over again. Things are tight out there and money is hard to come by. Yes, I cried. I turned to the kids and said "ok, now what". Then I felt so bad. I laid all of this on them. Hubby has no clue and only smiles when I tell him. So the only thing I can do is "go to the rock".....the song goes... Where do I go? When there's nobody else to turn to Who do I talk to? When nobody wants to listen Who do I lean on? Oh When there is no foundation stable I go to the rock I know he is able, I go to the rock I felt my world is falling apart. So many things to ...

  Thank you for all your prayers. Hubby slept peaceful when he was asleep. He got up about 7 times to use the restroom and then back to bed asleep. I was awake most of the night listening for him. So glad he got some restful sleep. Again, thank you for all your prayers and concerns...You all keep me going. God bless.

  The last few weeks have been going along pretty good. Lots of confusion and hubby not hearing much...he keeps getting real tired. But he has been ok. Night before last we had issues. The problem with Lewy Body is you never know what can set off an issue. Apparently hubby got something off TV, because that night he begins yelling about 2 am...not screaming but yelling. I go to the door of his room. He begins to cry still asleep and then he points a finger at me and starts yelling gibberish...I say "Brent Brent wake up". He finally does and tells me that communists were trying to get to the kids. Had to be from the TV. Last night we were sound asleep and he begins to scream, I hear him throwing his body around hitting the wall the bed shaking and him yelling. To be honest it kinda scared me. I go to the door of his room and say again "Brent wake up. I then turn the light on and say Brent wake up. Trying to do the steps the neurologist tells me to do. He wa...

Today I took hubby to the doctor to have his feet checked. A Podiatrist, because his feet keep swelling. The nurses took hubbies blood pressure and it was 179/90 and both nurses were a little nervous about it...they said "its to high" .I said "it's ok...that is good for him". The doctor was young but very kind. He listened and then said...with your hubbies problems and meds he is taking the least of our worries is a little foot swelling. So we had him do a few things and left. Hubby is resting. I have been waiting for a phone call....I was going to give it until Thursday to see if they were going to call. But impatient me I called them. Good thing I did....the receptionist was so nonchalant...like its no big deal...ok we will set you up for a tour. Just a noncommittal attitude. Me I want to reach through the phone and slap him...'listen buster this is my husband we are talking about ...get with the program"...but instead I hang up and call d...

  Our Lewy Body Dementia and Parkinson disease journey...trapped..october 28th For me, it is the worst feeling to be trapped in a situation not of your choosing......... where you have no idea how bad it will get........ how long it will last ..........and you have the sole responsibility for everything.......... which you have many doubts about whether you are capable of meeting........ . Your whole life is turned upside down ......you begin to question everything you say and do.....even family members question everything you say and do...... This is so very different from other marriage challenges.......... because you are alone in a marriage ...........with a hubby who no longer is capable of even realizing how bad the situation is....but you try and try to do the best that you can.......life.....without the hand of God I could not do this.......

  Well we have moved to a new stage. This stage I think is coming from his book movies which we have had to get off our TV. But for the last week hubby has been visited by Rosanna. This Rosanna wants to learn to drive semi..so Hubby has been helping her. I do not know a Rosanna and don't think I ever have. I have been home and no one has come by but hubby says she has. He will tell you stories about her and him trying to teach her but he has the guys from different jobs and different companies all mixed together and not one story makes since. This is why I have to keep certain programs off the TV he watches them and then thinks they are real. I am working on some plans and I feel guilty about doing it and then I know I have to do it and back and forth. Please help me pray if the Lord wants this to happen he puts all the pieces in place and if not he blocks them. I am torn on this. But things have to change. Thank you for the prayers. My heart is so heavy over all of this ...