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  Well, according to Facebook it has been one year since we first saw the neurologist in Meridian. We were told then that hubby had lewy body dementia and Parkinson disease. We were told that he was in middle to late stage and he had 2-5 years to live. I have cried and prayed and tried to make things as good as possible. We trusted the Lord and with all your prayers we have made it through some tough things. I can say life is far better today than it was a year ago. Hubby is on mood meds and they really do help. He is on a med to help with hallucinations, dreams and acting out the dreams. You know we are a no med family but sometimes we have to do what is best for our loved ones. These meds have really helped us out. We will see what the next year has for us. But we want to thank all of you who have walked with us through this journey. Who never cut us down, made fun of us, or passed us by. You have all cared and prayed and we fill your prayers. Now off to another year. W...

  Do you ever get to a place in your life where you feel you are in limbo? Orders for our shop are filled ....no longer working for son in construction, no longer working retail, holidays are over, housework is all caught up, decorations are all down, not planning many camping trips this summer, due to hubby's medical problems and appointments, sons apartment is now in order, I plan school lessons and research all I need for homeschooling two grandkids, and we do homeschool each day. But the rest of the time I am in limbo...like I am waiting...for what?.... not sure. Today hubby and grandkids were all asleep and I wondered around and around the house. Restless.....nothing seems interesting...so I grabbed a book and set and read the whole thing.... somethings a stir within me but not sure just what.....Hubby has been really tired...not hurting...just not wanting to read, watch TV or anything...just sleep or stare at nothing....2025 what do you have in store for us?....actually ...

  A few days ago I wrote a post/article about our journey for the Lewy Body Dementia Caregiver Support Group....later I was contacted by a lady from New Jersey asking to talk...I told them I am only a wife not a professional of anything. But ones are reaching out to talk. Someone with a ear to listen and feel the same pain we all feel. Pray I can help them with trusting the Lord. That is all I can recommend is trusting God. I myself is discouraged and failing. Today I feel so heart sick about this awful disease. I tried to get hubby to go shopping for a little bit with me. He decided to go but his leg has been swollen, his ankle and his knee. He rode with me to the store and stayed in the car. We got home and he fell asleep. I cooked dinner and watched as he gasped for air as he was sleeping. Mouth open and breathing hard. Finally he woke up and walked around and got some dinner. But choked on the dinner and spit it all over him and the chair. Went back to his chair a...

Tonight I almost have a fear to even post. Been a crazy emotional week. But hubby has been sick now for about 4 days. His leg, ankle and foot is swollen so he hobbles around the house. I am sure it is bakers knot again which they told us just to give Ibuprofen for the pain. But I am going to talk with the kids tomorrow and maybe take him to the walk in clinic to make sure we are doing what we can. So this post is for prayer. He is suffering with this and I know the diseases do strange things, but I need to know for sure. He is back to screaming and jumping in bed and hearing strange sounds he was screaming i am sliding stop stop..I was sound asleep and flew out of bed thinking i was having a heart attack. If you are tired of hearing about our journey that is ok....it's our journey and we are the ones walking in it. All we need is prayer thank you so much...appreciate all of you...and for those who have been asking ..yes I am on the mend...slowly getting my strength back......

  Lazy cold day here.... hubbies leg is still swollen, ankle and foot so he is limping along....me doing fine...thanks for prayers but we are just hunkering down at home again today...God bless and have a wonderful fun filled day.......

  Our Lewy Body Dementia and Parkinson Disease journey We live in such a crazy world. A world where most all of us are suffering in one way or another. Always something coming our way. No one is immune to it. It's life. But we pick up our selves and become an adult about it and move on. We find joy or happiness in one way or another and go on with life. Ones who have dementia....can't do this...they are slowly loosing their ability to figure things out and move on over the top of the situation. Hubby was setting yesterday with swollen leg, ankle and foot reading his Bible and he looks at me and says "ones like me going through disease needs HOPE".....HOPE...a life line to something better....never take HOPE from someone....words hurt, actions hurt but what do we do....we lay it at the feet of Jesus and then we move on. Hubby just wants to have HOPE....that he can still have a future even though he comments "my body is giving out". Stand strong peop...