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Our Lewy Body Dementia and Parkinson disease journey

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  Our Lewy Body Dementia and Parkinson disease journey...walking Hubby can't walk. He rode to wallawa lake which is about 2 hours one way. We stopped once to let him walk around. He rode in the wheel chair while there and then back home that evening. He hasn't been able to walk since. Going to see a doctor about getting his knee drained again. It is swollen really big. Need to get a lot done today but hubby comes first so just getting things done one step at a time.

Our Lewy Body Dementia and Parkinson disease journey...trip to lake

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  We were so excited to take a day away from everything and just go have some fun. We traveled 2 hours up and down some crazy hills but made it to the lake in Oregon. We met our daughter and her family there and had a great time at her camping spot. Her family had got a new camper and had camp all set up. Hubby just set and enjoyed everything and when we walked up to the go carts and golfing son Jon pushed him in the wheel chair so hubby didn't have to walk. We rode back to the campsite later and SIL Nathan cooked everyone hamburgers and brats. Just a great time and then we left to drive home. That's when hubby started going downhill. I had to drive slow the hills are just crazy ones, it was a total dark out night and deer were everywhere in the road. Steep cliffs on the side of the road all the way so I drove real slow. We got home and hubby went straight to bed. Half hour later he got up and could not walk to the bathroom legs were swollen. I got him there and he s...

Our Lewy Body Dementia and Parkinson disease journey...changes in life.

  Today I have had a hard time...the manual work is mostly over at the old house...but reality is sinking in...my old life is over...our projects of building fences, patios, laying bricks, building firepits, laying floors, removing walls etc is over....my life of small crazy projects is over...I am a sentimental old fashioned girl and now having a hard time letting go...yes I have a more modern home, a yard that is all landscaped, a carport and deck that is of the finest materials...but it is all different. Hubby wants to just go home....I say this is home. We are old....change is hard. Not saying we won't get used to it...just saying so different. No place for most of my projects so took them to the thrift store. Now I will have to find the new me....and where do I fit into this change. New friends are being made here...but am I supposed to change to a new role? So many changes hubby not knowing that this is life now...hubby not there to understand my feelings or to talk to. ...

Our Lewy Body Dementia and Parkinson disease journey

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Yesterday we worked really hard and put in a long day. We got everything inside and out gone from the house. This morning we were there by 6 am mopping, cleaning and getting ready for the next step which is the Real Estate comes in. She arrived and walked through the house and complimented me on it being empty and real clean. Just a few more days and it will be on the market...now praying that we get just the right number....to finish everything off. We want to be fair with the buyers but also know what we need so we place it in the Lords hands. We are exhausted but needed to go get groceries. Coming home is so nice as it is raining and we have a nice carport to drive into. Hubby has held up real good until today. Last load of groceries I here a loud thud and then moaning and look hubby is laid out on the deck and steps. Somehow he fell forward dropping the groceries, hitting his head on the screen door and was half on the deck and half on the steps. He never broke anything ...

Our Lewy Body Dementia and Parkinson journey

today we were working hard...nothing was working right it was hot and I am tired....I got really frustrated at hubby as he was trying to figure out what I wanted done I was trying to explain and finally I had to just say. Please just go away and leave me for 10 minutes. Just walk away. He had no idea what he did wrong. Me I was a mess. Hot, sweaty, tired and frustrated. I was the one going bonkers....hubby was just trying but not trying. Anyway we got it done after 10 minutes I went to find him and we worked together and got it done. Yes sometimes I am the mess.....now he is exhausted and just wanting to set and rest....I think we need a few days off....so planning a road trip for next week....time for some fun.

Our lewy body dementia and parkinson disease journey

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  Our lewy body dementia and parkinson disease journey We have been working real hard to empty one house and set up another we start at 5 am and work until 7 pm. So much after 23 years in one home. Today we are trying to move a small freezer into our new home. Grandkids are sick so can't get much done. Laptop not working so I hen peck my phone. Hubby came inside with blood all over him he doesn't know what happened when I got him cleaned up he had a big cut on his arm. Well back to work want to get the house on the market as soon as possible

Our lewy body dementia and parkinson disease journey

  Our lewy body dementia and parkinson disease journey So many trips. .up at 6 am and over loading truck...we try to make 5 to 6 trips a day...hubby has been a trooper in helping but yesterday I couldn't move had to take the day off but we are a team and getting it done...one load today because of doctor appointments but hope to get 3 to 4 this evening. Mercy I am old...hubby woke me up at 3 something screaming. He was dreaming he was on fire.. eventually life will settle down at least that is what I keep saying.