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Our Lewy Body Dementia and Parkinson disease journey

  Here is a problem I am having issues with. Hubby hates his hearing aid and hearing loss is part of Lewy body dementia. So, my problem.....hubby refuses to wear his hearing aid. If he does, he turns it as low as possible. He HATES it. But he really does need it, or at least his doctor and I think so. Well, his hearing aid quit again. I will take it to see if they can repair it again. But I think they will push me for a new hearing test and a new device. My problem now is... .do I keep forcing him to try to wear it .get it fixed... possibly buy a new one... or just let him be and be comfortable without it. I want to do what is best. Doctor says at the stage we are in it's up to us....decisions.

Our Lewy Body Dementia and Parkinson Disease journey

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  Been a busy weekend for hubby. Daughter and her family came home to help enjoy Grandpa's birthday and the Asotin Fair and Parade. We took hubby's wheelchair, and it worked out great for hubby. He got tired so son in law Nate pushed him around. We also got to see some good friends while in Asotin...Jess and Carol Hahn....was so good to visit with them. Then that evening son Jon and his family came for a bac kyard firepit BBQ and games. Such good family time...even grandson Brayden and Sarah made it home from Cancun to enjoy some time with us. We are blessed with the best family. Today hubby has spent most of the day on the front patio. He will set for hours and just watch the cars go by. Daughter and family left this morning for home. Quiet relaxing day. Hubby has had some crazy nights, and busy days so kind of nice just to relax. Otherwise, all is well, and we are just trying to make all the memories we can. I tell people we don't know how long we have together .....

Our Lewy Body Dementia and Parkinson disease journey

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Now what I am going to say is for our valley and for us. Do your own homework for your area and spouse. I have done my homework...visited several places and in this valley...no one wants to deal with Lewy Body Dementia. It's like a plague. When you ask they say "nope"...we can't handle that here. It's not their fault...this disease takes special people and 24/7 care....I get it. I have ones from the valley who specialize in this disease call me and talk ...ones from Boise call and talk with me. And, it comes down to "stay in place"....so for now we are being told the best for hubby is to "stay in place" and have ones come to us. It's cheaper and he is safe here. But ones can come into the home to help. This I will be checking more into to see where that goes. Thank you to the ones who have recommended homes outside of the valley but kids and grandkids want grandpa close. So that is what we will do. Actually, we are fine...I get o...
  Doing research on special places for hubby...for down the road....most places do not want to deal with Lewy Body Dementia....interesting...so I decide to go check out a couple places and just research them....went to one place...they were very sweet and understanding...gave me some good info...I walked out and cried all the way home....called my daughter and said "I can't do this"...I am just an evil person for even thinking of this....daughter says mom our neurologist says to start now checking for a place....neurologist gave me 6 months to a year.... a year ago to have him placed....but so emotional....I just need to go have a good cry....

Our Lewy Body Dementia and Parkinson disease journeuy ....wheel chair walk

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  Got hubby up to go for a walk.. Taking wheel chair in case I have to push him home

Our Lewy Body Dementia and Parkinson disease journey...emotionally exhausted

  Been a hard week. But I have been able to get out and walk everyday with someone staying home with hubby. It has been fun but I feel like I am letting hubby down when I go out without him so I hurry as fast as I can to get back. He doesn't even seem to notice but I do. Hubby has been real tired. Exhausted. Doesn't want to go anywhere and if I make him go he stays in the car. He has been going through more changes. Always throwing me a curve ball. Some that just floors me...it's so not like him. He wants to go to bed all the time and sleep. I find it getting harder for me to keep up with the unknown. I know in the future we will be making some new adjustments for him...what???? I am not sure. But I am almost emotionally exhausted. Not with life but with these diseases. Please pray for me to do what is right. What to do...don't know. Most of the ways you turn to when working with these diseases...the community doesn't have to many options. Only if you hav...

Palm Sunday

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  What do you do when God’s plan doesn’t look like what you expected? Palm Sunday... marks the day Jesus entered Jerusalem—riding on a donkey, greeted by crowds waving palm branches, shouting, “Hosanna! Blessed is He who comes in the name of the Lord!” (John 12:13)....... It was a moment of celebration, a glimpse of victory… but just days later, those same voices turned to shouts of “Crucify Him.” Maybe today,.... you're in a place where things don’t look like you thought they would.... Maybe you were believing for a breakthrough,.... a restored relationship,.... a healing—only to be met with silence,.... disappointment,.... or unexpected detours. But here’s what Palm Sunday reminds us: God’s plan is always bigger than our perspective...... The people wanted Jesus to overthrow Rome, but Jesus came to overthrow sin and death..... They wanted temporary relief, but Jesus came to bring eternal redemption. Even when life feels uncertain, even when it looks like hope is slipping away, G...