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Our Lewy Body Dementia and Parkinson Disease journey....memory hugs

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 For Christmas we decided to have grandpa give each grandchild that was home a memory hug...since he has dementia and parkinson we don't know how long his memory will be with us.  So each grandchild was given a sweatshirt and we painted Brents hands and arms and he gave each child a hug, which put his hand print on the back of each shirt.     

Our Lewy Body Dementia and Parkinson Disease Journey...moving

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  Been having to rethink some of my ideas and change a few things I wanted to do in the future....ONE .... yes, it is a good idea for one level ........but not for hubby finding his way around in a new environment...especially with him already getting lost a few times when at another place....so maybe have to rethink how he moves around in our current home....instead of moving him....TWO....sons and son in law (Jon, Jeremy and Nathan)....are telling me to slow down....so thankful for each of them...they keep me calm and in my place.....all of them are there for me and I love them all so much...even grandson set and told me yesterday....grandma slow down and think this through....we can make this work...thank you Brayden...hubby fell the other day trying to get up two steps to the kitchen and cut his arm....but I think I could use child gates and block that way of him going....also removing all tools and extra gas etc out of all backyard sheds....going to child proof all of them for...

Our Lewy Body Dementia and Parkinson Disease Journey.......Hubby trying to remember age

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  Hubby 5 years ago ...strong and healthy...today I asked him how old he was, and he is so proud looks at me and says "I am 78 and will be soon 79: .......nope...he is 73 and will soon be 74 on the 19th of this month....but at least he is happy today no matter what his age is ...counting our blessings...  

Our Lewy Body Dementia and Parkinson journey.......thinking about cremation vs burial

  I know this sounds morbid, but I have been doing a lot of research on the Biblical views of cremation vs traditional burial....I have watched tons of videos, listened to lots of ministers.... walked through Biblical studies and I can see good points on both sides....in today's world you are pushed to do cremation as its cheaper, faster, better for environment due to not having to have so many Cemetaries....hubby and I have talked a lot about it...and we both come down to traditional burial for us....we are not against what you choose or how you go about it...but for us....we are just two ole fogies who love the traditional way to do it...simple easy no dramas, dinners, festivities...just family....just getting our priorities in place....

Our Lewy Body Dementia and Parkinson Disease journey....emotions

  It's so hard. I know that by now I should be able to handle the emotions of this disease. But it's so hard. We were sound asleep, and I hear these yelling crazy words...then he begins crying saying "please stop". I lay and ask the Lord please help him. It gets quiet and I think it's over then he gets up and walks through the house. I lay and pray, and he goes back to bed. He is asleep now and I am stressed. I am a girl who believes in prayer. But still hubby suffers. I know God can heal but still hubby suffers. I walk the floor asking the Lord already to help us...I know some of you have gone through worse and I am trying not to complain. It's just that it's so hard to watch your hubby change...daily. And you have to just sit and watch. Yes, he lost his temper today. He just yelled at me was all. And yes he was sorry after. I am a hard person to live with I know. But after 51 years you would think we got this. All is quiet here now so I guess I...

Our lewy Body Dementia and Parkinson Disease journey...remembering his father

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  Cleaning out a couple sheds and found Brents three wheel bike....When Brent's dad was in his late 80's early 90's he had a three wheel bicycle that he would ride from Weippe to Pierce and back which is 11 miles up hill...he would go to the pharmacy there and get his meds....he wouldn't let anyone take him he would say "I have all day to do this" and off he would go...many of you remember seeing him and he even made the newspapers.....our son Jon came up with a three wheel bike for his dad for Father's day. in 2018.....he saw a vintage one online and bought it.... hubby was so excited ...reminded him of his dad......yes, I tried it but I forgot the hand brakes and ran into the neighbor's fence......we just love this, and it was so thoughtful of Jon and Sue to get this for their dad...it has brought some good memories back for Brent....no hubby didn't ride it...was hard just getting him on it....

Our Lewy Body Dementia and Parkinson Disease journey....watching hubby change

  It's so hard. I know that by now I should be able to handle the emotions of this disease. But it's so hard. We were sound asleep, and I hear these yelling crazy words...then he begins crying saying "please stop". I lay and ask the Lord please help him. It gets quiet and I think it's over then he gets up and walks through the house. I lay and pray, and he goes back to bed. He is asleep now and I am stressed. I am a girl who believes in prayer. But still hubby suffers. I know God can heal but still hubby suffers. I walk the floor asking the Lord already to help us...I know some of you have gone through worse and I am trying not to complain. It's just that it's so hard to watch your hubby change...daily. And you have to just sit and watch. Yes, he lost his temper today. He just yelled at me was all. And yes he was sorry after. I am a hard person to live with I know. But after 51 years you would think we got this. All is quiet here now so I guess I...